TAKING CARE: ETHICAL CAREGIVING
IN OUR AGING SOCIETY
Table of Contents
The President's Council on Bioethics
Washington, D.C.
September 2005
www.bioethics.gov
Thematic Bibliography
Readers newly interested in this subject area may find the items
noted with asterisks most useful.
Advance Directives / Legal Instruments Books
and Articles
Alexander, G. "Durable Power of Attorney as a Substitute for Conservatorship."4
Psychology, Public Policy, and Law 653, September 1998.
American Psychological Association, Inc. "Optimal Use of Orders
Not to Intervene and Advance Directives." 4 Psychology, Public
Policy, and Law 668, September 1998.
Boxx, K. "The Durable Power of Attorney's Place in the Family
of Fiduciary Relationships." 36 Georgia Law Review 1, Fall
2001.
Brett, A. "Limitations of Listing Specific Medical Interventions
in Advance Directives." Journal of the American Medical Association
255(6): 825-828, August 14, 1991.
Cantor, N. Making Medical Decisions for the Profoundly Mentally
Disabled. Boston, MA: MIT Press, 2005.
Cantor, N. "Making Advance Directives Meaningful." 4 Psychology,
Public Policy, and Law 629, September 1998.
Cohen, I. Glenn. "Negotiating Death: ADR and End-of-Life Decision
Making." 9 Harvard Negotiation Law Review 253, Spring 2004.
Coppola, K., et al. "Accuracy of Primary Care and Hospital-based
Physicians' Predictions of Elderly Outpatients Treatment Preferences
With and Without Advance Directives." Archives of Internal Medicine
161: 431-440, 2001.
Culver, C. "Advance Directives." 4 Psychology, Public Policy,
and Law 676, September 1998.
Danis, M. "A Prospective Study of Advance Directives for Life-Sustaining
Care." New England Journal of Medicine 324(13): 882-888,
1991.
Degenholtz, H., et al. "Brief Communication: The Relationship
Between Having a Living Will and Dying in Place." Annals of Internal
Medicine 141: 113-117, 2004.
Ditto, P., et al. "Advance Directives as Acts of Communication:
A Randomized Controlled Trial." Archives of Internal Medicine
161: 421-430, 2001.
Dresser, R. "Dworkin on Dementia: Elegant Theory, Questionable
Policy." Hastings Center Report 25(6): 32-38, November-December
1995.
Dresser, R. "Missing Persons: Legal Perceptions of Incompetent
Patients." 46 Rutgers Law Review 609, Winter 1994.
Dresser, R. "Precommitment: A Misguided Strategy for Securing
Death with Dignity." 81 Texas Law Review 1823, June 2003.
Dresser, R. "Schiavo: A Hard Case Makes Questionable Law." Hastings
Center Report 34(3): 8-9, May-June 2004.
Dresser, R. "The Conscious Incompetent Patient." Hastings Center
Report 32(3): 9-10, May-June 2002.
Eakes, M., et al. "Planning Lessons Learned from End-of-Life Disputes."
17 National Academy of Elder Law Attorneys Quarterly 21,
Summer 2004.
Eiser, A. and Weiss, M. D. "The Underachieving Advance Directive:
Recommendations for Increasing Advance Directive Completion." American
Journal of Bioethics 1: W10, 2001.
Emanuel, L., et al. "Advance Directives for Medical Care-A Case
for Greater Use." New England Journal of Medicine 324(13):
889-895, March 28, 1991.
Fagerlin, A. and Schneider, C. "Enough: The Failure of the Living
Will." Hastings Center Report 34(2): 30-42, March-April 2004.
Gallagher, E. "Advance Directives for Psychiatric Care: A Theoretical
and Practical Overview for Legal Professionals." 4 Psychology,
Public Policy, and Law 746, September 1998.
Garas, N. and Pantilat, S. "Chapter 49: Advance Planning for End-of-Life
Care." Making Health Care Safer: A Critical Analysis of Patient
Safety Practices. AHRQ Evidence Report No. 43. July 20, 2001.
http://www.ncbi.nlm.nih.gov/books/ bv.fcgi?rid=hstat1.section.62397
(accessed August 24, 2005).
Goodman, M., et al. "Effect of Advance Directives on the Management
of Elderly Critically Ill Patients." Critical Care Medicine
26: 701-704, 1998.
Hamann, A. "Family Surrogate Laws: A Necessary Supplement to Living
Wills and Durable Power of Attorney." 38 Villanova Law Review
103, 1993.
Hammes, B. and Rooney, B. L. "Death and End-of-Life Planning in
One Midwestern Community." Archives of Internal Medicine
158: 383-390, 1998.
Hawkins, N., et al. "Micromanaging Death: Process Preferences,
Values, and Goals in End-of-Life Medical Decision-Making." Gerontologist
45: 107-117, 2005.
Holley, J., et al. "Factors Influencing Dialysis Patients' Completion
of Advance Directives." American Journal of Kidney Diseases
30: 356-260, 1997.
Jeffreys, J. "Advance Directives: Are They Worth the Paper They're
Written On?" 27 Colorado Lawyer 125, June 1998.
Karnath, B., and Vaiani, C. "When a Family Member Changes Their
Mind Regarding the DNR Order: The Importance of Documentation."
Ethics & Medicine: An International Journal of Bioethics
20(2): 31-34, Summer 2004.
Lieberson, A. Advance Medical Directives. Deerfield, IL:
Thomson Legal Publishing, 1992.
Longnecker, R. "Health Care Proxies, Living Wills, and Durable
Power of Attorney." Proceedings from American Bar Association Continuing
Legal Education. American Law Institute, September 12, 1991.
Lynn, J. "Why I Don't Have a Living Will." Law, Medicine, &
Health Care 19: 101-104, 1991.
Meisel, A. and Cerminara, K. The Right to Die: The Law of End-of-Life
Decisionmaking. 3rd ed. New York: Aspen Publishers,
2004 (2005 Supplement).
Morrison, R., et al. "The Inaccessibility of Advance Directives
on Transfer from Ambulatory to Acute Care Settings." Journal
of the American Medical Association 274: 501-503, 1995.
Schaefer, K., et al. "The Advance Directive: An Expression of
Autonomy, But Also of Care." Ethics & Medicine: An International
Journal of Bioethics 18(1): 15-19, Spring 2002.
Sehgal, A. "How Strictly Do Dialysis Patients Want Their Advance
Directives Followed?" Journal of the American Medical Association
267(1): 59-63, 1992.
Shapiro, M., et al. Bioethics & Law: Cases, Materials and
Problems. 2nd ed. Eagan, MN: West Publishing, 2003.
Teno, J. "Advance Directives: Time to Move On." Annals of Internal
Medicine 141: 159-160, 2004.
Teno, J. "Do Advance Directives Provide Instructions That Direct
Care?" Journal of the American Geriatrics Society 45: 508-512,
1997.
Zimring, S. "Multi-Cultural Issues in Advance Directives." 13
National Academy of Elder Law Attorneys Quarterly 12, Summer
2000.
Zingmond, D., et al. "Regional and Institutional Variation in
the Initiation of Early Do-Not-Resuscitate Orders." Archives
of Internal Medicine 165(15): 1705-1712, August 8, 2005.
Case Law & Statutes Rather than attempt to provide
a comprehensive list of case law and statues related to advance
directives, we reference here only those items reviewed during the
writing of this report. We refer legal researchers to the seminal
work in this field by Alan Meisel and Kathy L. Cerminara, The
Right to Die: The Law of End-of-Life Decisionmaking.
Federal
Cruzan v. Director, Missouri Dept. of Health, 497 U.S.
261, 110 S. Ct. 2841 (1990).
Pain Relief Promotion Act of 1999, H.R. 2260, S. 1272 (not
enacted), available online at http://thomas.loc.gov/cgi-bin/query/z?c106:S.1272.
Patient Self-Determination Act of 1990, §4206 and §4751
Omnibus Reconciliation Act of 1990, Pub L No. 1010-508 (November
5, 1990).
Ulrich, L. The Patient Self-Determination Act: Meeting the
Challenges in Patient Care. Washington, D.C.: Georgetown University
Press, 1999.
State
Conservatorship of Wendland, 110 Cal. Rptr. 2d 412 (Cal.
2001).
In re Martin, 538 N.W. 2d 399 (Mich. 1995).
Matter of Conroy, 486 A. 2d 1209 (N. J. 1989).
Matter of Edna M. F., 563 N.W. 2d 485 (Wis. 1997).
Matter of Spring, 405 N.E. 2d 115 (Mass. 1980).
Matter of Quinlan, 355 A. 2d 647 (N. J. 1976).
McKay v. Bergstedt, 801 P. 2d 617 (Nev. 1990).
Superintendent of Belchertown State School v. Saikewicz,
370 N.E. 2d 417 (Mass. 1977).
Model Codes and Directives Alexander, G. "Time
for a New Law on Health Care Advance Directives." Symposium: Legal
Issues Relating to the Elderly. 42 Hastings Law Journal 755,
March 1991.
Bok, S. "Personal Directions for Care at the End of Life." New
England Journal of Medicine 295(7): 367-369, August 12, 1976.
Emanuel, L. and Emanuel, E. "The Medical Directive: A New Comprehensive
Advance Care Document." Journal of the American Medical Association
261(22): 3288-3293, June 9, 1989.
Kutner, L. "Due Process of Euthanasia: The Living Will, a Proposal."
44 Indiana Law Journal 539, 1969.
Martin, D., et al. "A New Model of Advance Care Planning." Archives
of Internal Medicine 159: 86-92, 1999.
McLean, E. "Living Will Statutes in Light of Cruzan v. Director,
Missouri Department of Health: Ensuring that Patient's Wishes Will
Prevail." 40 Emory Law Journal 1305, Fall 1991.
Modell, W. "A 'Will' to Live." New England Journal of Medicine
290(16): 907-908, April 18, 1974.
Stavis, P. "The Nexum: A Modest Proposal for Self-Guardianship
by Contract: A System of Advance Directives and Surrogate Committees-At-Large
for the Mentally Ill." 16 Journal of Contemporary Health Law
and Policy 1, Winter 1999.
Uniform Health-Care Decisions Act (1993).
Uniform Rights of the Terminally Ill Act (1989).
Reports
American Bar Association Commission on Law & Aging. Health
Care Power of Attorney and Combined Advance Directive Legislation.
Chicago, IL: ABA, September 2004.
American Bar Association Commission on Law & Aging. Health
Care Surrogate Decision Making Legislation. Chicago, IL: ABA,
June 2001.
American Bar Association Commission on Law & Aging. Surrogate
Consent in the Absence of an Advance Directive. Chicago, IL:
ABA, July 2004.
American Bar Association Section of Real Property, Probate, and
Trust Law. The Uniform Health-Care Decisions Act and its Progress
in the States. Chicago, IL: ABA, May/June 2001.
Last Acts. Means to a Better End: A Report on Dying in America
Today. Washington, D.C.: Last Acts, 2002.
*New York State Task Force on Life and the Law. When Others
Must Choose: Deciding for Patients Without Capacity. New York
State Task Force on Life and the Law. December 1992.
Sample Forms
Aging with Dignity. "Five Wishes: The Easy Way to Help You and
Your Loved Ones Plan for the Unexpected." Tallahassee, FL: Aging
With Dignity, 2001. (www.agingwithdignity.org)
Legal Counsel of the Elderly, Inc. "Planning for Incapacity: A
Self-Help Guide-Advance Directive Forms for Connecticut." 12th
Annual Elder Law Institute Representing the Elderly Client of Modest
Means, June 2000. Practising Law Institute, 2000. (This state provided
as one example of many.)
Schuster, M. "Planning for Incapacity: A Self-Help Guide-Advance
Directive for New York." Proceedings of 11th Annual Elder
Law Institute: Representing the Elderly Client of Modest Means,
July 1999. Practising Law Institute, 1999. (This state provided
as one example of many.)
Alzheimer's Disease
Costs
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2000.
Martikainen, J., et al. "Potential Cost-Effectiveness of a Family-Based
Program in Mild Alzheimer's Disease Patients." The European
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Prigerson, H. "Costs to Society of Family Caregiving for Patients
with End-Stage Alzheimer's Disease." New England Journal of Medicine
349(20): 1891-1892, 2003.
Riggs, J. A. "The Health and Long-Term Care Policy Challenges
of Alzheimer's Disease." Aging & Mental Health 5(Supp.
1): S138-S145, 2001.
Taylor, D. H., Jr. "Alzheimer's Disease and the Family Caregiver:
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Treatment & Research
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Zlokovic, B. V. "Neurovascular Mechanisms of Alzheimer's Neurodegeneration."
Trends in Neurosciences 28(4): 202-208, 2005.
Caregiving
Burdens & Benefits
Acton, G. and Kang, J. "Interventions to Reduce the Burden of
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AARP. In the Middle: A Report on Multicultural Boomers Coping
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Bell, C. M., et al. "The Association between Caregiver Burden
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2001.
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2004.
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Sources of Information and Support
Institutional
Government
Administration on Aging
Washington, D.C. 20201
(202) 619-0724
http://www.aoa.dhhs.gov
State and Area Agencies on Aging Locator: http://www.aoa.gov/eldfam/
How_To_Find/Agencies/Agencies.asp
Elders & Families Website: http://www.aoa.gov/eldfam/eldfam.asp
Agency for Healthcare Research and Quality
Office of Communications
540 Gaither Rd., Ste. 2000
Rockville, Maryland 20850
(301) 427-1364
http://www.ahrq.gov
AHRQ supports research on health care outcomes; quality; cost, use,
and access.
Alzheimer's Disease Education and Referral Center
P.O. Box 8250 Silver Spring, Maryland 20907-8250
1-800-438-4380
http://www.alzheimers.org
Created by Congress to "compile, archive, and disseminate information
concerning Alzheimer's disease" for health professionals and
the public.
Centers for Medicare and Medicaid Services
7500 Security Boulevard
Baltimore, Maryland 21244-1850
1-800-MEDICARE
(410)-786-3000
Main Website: http://www.cms.hhs.gov
Medicare Website: http://www.medicare.gov
Medicaid Consumer Information Website: http://www.cms.hhs.gov/
medicaid/consumer.asp
Department of Health and Human Services
200 Independence Ave., S.W. Washington, D.C. 20201
1-877-696-6775
(202)-619-0257
Main Website: http://www.hhs.gov/
National Strategy for Suicide Prevention- Suicide Among the Elderly
Website: http://www.mentalhealth.samhsa.gov/suicideprevention/elderly.asp
Department of Veterans Affairs
810 Vermont Ave., N.W. Washington, D.C. 20420
1-800-827-1000
Main Website: http://www.va.gov/
National Cemetery Administration Website: http://www.cem.va.gov
Eldercare Locator, U.S. Administration on Aging
1-800-677-1116
http://www.eldercare.gov/
The Eldercare Locator connects older Americans and their caregivers
with sources of information on senior services. The service links
those who need assistance with state and local area agencies on
aging and community-based organizations that serve older adults
and their caregivers.
MedLinePlus Health Information
U.S. National Library of Medicine
8600 Rockville Pike
Bethesda, Maryland 20894
(888) FIND-NLM (888) 346-3656
http://www.nlm.nih.gov/medlineplus
National Institutes of Health
National Institutes of Health
9000 Rockville Pike Bethesda, Maryland 20892
(301) 496-4000
Main Website: http://www.nih.gov
NIH Senior Health Website: http://nihseniorhealth.gov/listoftopics.html
Includes: The National Center for Complimentary and Alternative
Medicine
1-888-644-6226 http://nccam.nih.gov/
and The National Institute of Neurological Disorders and Stroke
(800) 352-9424 http://www.ninds.nih.gov/
National Institute on Aging
Building 31, Rm. 5C27
31 Center Drive, MSC 2292 Bethesda, Maryland 20892
http://www.nia.nih.gov/
NIA leads the federal effort on aging research and its site includes
written materials and other educational resources.
National Library of Medicine
8600 Rockville Pike
Bethesda, Maryland 20894
(888) FIND-NLM
(301) 594-5983
http://www.nlm.nih.gov/
Senate Special Committee on Aging
G31 Dirksen Senate Office Building
Washington, D.C. 20510
(202) 224-5364
http://www.senate.gov/~aging
Senior Community Service Employment Program, Department
of Labor
Employment and Training Agency of the U.S. Department of Labor
Frances Perkins Building
200 Constitution Ave., N.W.
Washington, D.C. 20210
1-877-US-2JOBS
http://www.doleta.gov/seniors/
Senior Corps
1201 New York Ave., N.W.
Washington, D.C. 20525
(202) 606-5000
(202) 565-2799
http://www.seniorcorps.org/
Network of local volunteer opportunities for persons 55 and
older organized by the federal government.
Social Security Administration
Office of Public Inquiries
Windsor Park Building
6401 Security Blvd.
Baltimore, Maryland 21235
1-800-772-1213
http://www.ssa.gov
White House Conference on Aging
4350 East-West Highway, Ste. 300
Bethesda, Maryland 20814
(301) 443-9462
http://www.whcoa.gov/
Private
AARP
601 E St., N.W.
Washington, D.C. 20049
1-888-OUR-AARP
http://www.aarp.org
AARP is a nonprofit, membership organization for people age 50 and
over that provides health information, advocates in the public policy
arena, and supplies information on aging resources.
Aging with Dignity
P.O. Box 1661
Tallahassee, Florida 32302
1-888-5-WISHES
http://www.agingwithdignity.org
Provides the Five Wishes Living Will.
Alliance for Aging Research
2021 K St., N.W., Ste. 305
Washington, D.C. 20006
(202) 293-2856
http://www.agingresearch.org/
Promotes medical and behavioral research into the aging process
and works toward improving baby boomer health by "developing, implementing
and advocating programs in research, professional and consumer health
education and public policy."
Alliance for Retired Americans
888 16th St., N.W.
Washington, D.C. 20006
(202) 974-8222
http://www.retiredamericans.org/
Alzheimer's Association
225 N. Michigan Ave., Fl. 17
Chicago, Illinois 60601-7633
1-800-272-3900 312-335-8700
http://www.alz.org/
American Academy of Hospice and Palliative Medicine
4700 W. Lake Ave.
Glenview, Illinois 60025
(847) 375-4712
http://www.aahpm.org/
American Academy of Pain Medicine
4700 W. Lake
Glenview, IL 60025
(847) 375-4731
http://www.painmed.org/
American Association for Geriatric Psychiatry
7910 Woodmont Ave., Ste. 1050
Bethesda, Maryland 20814-3004
(301) 654-7850
Main Website: http://www.aagponline.org/
Geriatric Mental Health Foundation (GMHF) Website: http://www.gmhf
online.org/gmhf/
A national association representing and serving members of the field
of geriatric psychiatry. The Foundation website includes mental
health information for older adults and their families, including
finding a geriatric psychiatrist.
American Association of Homes and Services for the Aging
2519 Connecticut Ave., N.W.
Washington, D.C. 20008-1520 (202) 783-2242
http://www.aahsa.org/
The AAHSA represents over 5,600 not-for-profit nursing homes,
retirement communities, assisted living facilities, and home and community-based
service providers. The site includes consumer information and member
information.
American Association of Suicidology
5221 Wisconsin Ave., N.W.
Washington, D.C. 20015
(202) 237-2280
http://www.suicidology.org
National 24-Hour Suicide Prevention Lifeline: 1-800-273-TALK
Also provides referrals for mental health professionals, substance
abuse assistance, housing, etc.
American Bar Association Commission on Law and Aging
740 15th St., N.W.
Washington, D.C. 20005-1022
(202) 662-8690
http://www.abanet.org/aging/
American Chronic Pain Association
P.O. Box 850 Rocklin, California 95677
1-800-533-3231
http://www.theacpa.org/
This organization coordinates local groups that provide support
for those suffering from chronic pain. The site also provides educational
materials.
American Federation for Aging Research
70 West 40th St., 11th Floor
New York, New York 10018
(888) 582-2327 (212) 703-9977
http://www.afar.org/
American Geriatrics Society (AGS)
The Empire State Building
350 Fifth Ave., Ste. 801
New York, New York 10118
1-800-563-4916 (212) 755-6810
Main Web Site: http://www.americangeriatrics.org
Foundation for Health in Aging Website: http://www.healthinaging.org/
American Health Assistance Foundation
22512 Gateway Center Dr.
Clarksburg, Maryland 20871
1-800-437-2423 (301) 948-3244
http://www.ahaf.org
A nonprofit funding research on age-related and degenerative diseases,
educating the public, and providing emergency financial assistance
to Alzheimer's disease patients and their caregivers.
American Hospice Foundation
2120 L St., N.W., Ste. 200
Washington, D.C. 20037
(202) 223-0204
http://www.americanhospice.org
"Provides a searchable database of hospices, teaches courses
and workshops on end of life issues for consumers, providers, and
hospices, and researches consumer needs."
American Physical Therapy Association
Section on Geriatrics
1111 North Fairfax St.
Alexandria, Virginia 22314
1-800-999-2782 ext.3238
http://www.geratricspt.org
American Society on Aging
833 Market St., Ste. 511 San Francisco, California 94103
(800) 537-9728 (415) 974-9600
Main Website: http://www.asaging.org/
Lifetime Education and Renewal Network Website: http://www.asaging.org
/learn/index.html
An association for professionals in the aging fieldoffering educational
programming, publications and training. Americans for Better
Care of the Dying
P.O. Box 5578
Washington, D.C. 20016
http://www.abcd-caring.org/
Advocating for "public policy reforms such as improved pain management,
better financial reimbursement systems, enhanced continuity of care,
and support for family caregivers."
Assisted Living Federation of America
11200 Waples Mill Rd, Ste. 150
Fairfax, Virginia 22030
(703) 691-8100
http://www.alfa.org/
The site provides consumer information on assisted living, including
lists of residences. Association for Death Education and Counseling
60 Revere Drive, Ste. 500
Northbrook, Illinois 60062
(847) 509-0403
http://www.adec.org
Center for Advanced Illness Coordinated Care
113 Holland Avenue, 11T
Albany, New York 12208
(518) 626-6125
http://www.coordinatedcare.net/
A non-profit educational organization that provides training and consultation
in the AICC Program, a 6-visit intervention of structured conversations
and specialized care coordination for patients with advanced illness
and their families. Center for Home Care Policy and Research
Visiting Nurse Service of New York
107 East 70th St.
New York, New York 10021
(212) 609-1531
http://www.vnsny.org/research/
Center on an Aging Society
Health Policy Institute
Georgetown University
2233 Wisconsin Avenue, NW, Suite 525
Washington, D.C. 20007
(202) 687-9840
http://www.aging-society.org
Center to Advance Palliative Care
1255 Fifth Ave., Ste. C-2
New York, New York 10029
(212) 201-2670
http://www.capc.org/
Supported by the Robert Wood Johnson Foundation and the Mount Sinai
School of Medicine (NY), "CAPC provides health care professionals
with the tools, training, and technical assistance necessary to start
and sustain palliative care programs in hospitals and other health
care settings." Children of Aging Parents
P.O. Box 167
Richmond, Virginia 18954
1-800-227-7294
http://www.caps4caregivers.org/
A nonprofit offering assistance to caregivers of the elderly or
chronically ill by providing information, referrals and support
on caregiving, including respite care, and housing.
City of Hope Pain/Palliative Care Resource Center
1500 East Duarte Rd.
Duarte, California 91010
(626) 359-8111 ext. 63829
http://www.cityofhope.org/prc
A clearinghouse collecting and "disseminating information and resources
to assist others in improving the quality of pain management and
end of life care (such as) pain assessment tools, patient education
materials, quality assurance materials, end of life resources, research
instruments." An index of documents is available for downloading
from their website.
Family Caregiver Alliance
180 Montgomery St., Ste. 1100
San Francisco, California 94104
(800) 445-8106
(415) 434-3388
http://www.caregiver.org/
Support group for caregivers of those suffering from Alzheimer's
and other brain disorders.
Fisher Center for Alzheimer's Research Foundation
One Intrepid Square
West 46th Street & 12th Ave.
New York, New York 10036
1-800-ALZINFO
http://www.alzinfo.org/
Funeral Consumers Alliance
33 Patchen Rd.
South Burlington, Vermont 05403
1-800-765-0107
http://www.funerals.org/
A nonprofit organization that provides educational materials on
funeral choices, refers individuals to appropriate societies and
agencies supplying local services, and serves as a consumer advocate
for reforms on the national, state, and local levels.
Generations United
1333 H St., N.W., Ste. 500 W
Washington, D.C. 20005
(202) 289-3979
http://www.gu.org
A membership organization promoting intergenerational strategies,
programs, and public policies. It also provides training for practitioners
who work with grandparents caring for grandchildren.
Gerontological Society of America
1030 15th St., N.W., Ste. 250
Washington, D.C. 20005
Main Telephone: (202) 842-1275
National Academy on an Aging Society: (202) 408-3375
Main Website: http://www.geron.org/
National Academy on an Aging Society Web Site: http://www.agingsociety.org/
Global Action on Aging
P.O. Box 20022
New York, New York 10025
(212) 557-3163
http://www.globalaging.org/
A non-profit organization with special consultative status with
the United Nations Economic and Social Council. It carries out research
on emerging topics and publishes the results on its website.
Grantmakers In Aging
7333 Paragon Rd., Ste. 220
Dayton, Ohio 45459-4157
(937) 435-3156
http://www.giaging.org/
A professional organization for grantmakers working for older adults.
Gray Panthers
733 15th St., N.W., Ste. 437
Washington, D.C. 20005
1-800-280-5362
(202) 737-6637
http://www.graypanthers.org
Think tank concerned with forced retirement, government programs,
health insurance, and nursing home abuse.
HelpAge International
P.O. Box 32832
London N1 9ZN, United Kingdom
011-44-20-7278-7778
http://www.helpage.org/
Focuses on the health status and other needs of older adults in developing
countries.
Hospice and Palliative Nurses Association
One Penn Center West, Ste. 229
Pittsburgh, Pennsylvania 15276
(412) 787-9301
http://www.hpna.org
Hospice Association of America
228 Seventh Street, S.E.
Washington, D.C. 20003
(202) 546-4759
http://www.nahc.org/haa/
A national organization representing more than 2,800 hospices and
thousands of caregivers and volunteers who serve terminally ill patients
and their families. Its website provides basic consumer information
about hospice care and the hospice industry. Hospice
Education Institute
3 Unity Square
P.O. Box 98
Machiasport, Maine 04655-0098
1-800-331-1620 (207) 255-8800
http://www.hospiceworld.org
An independent, not-for-profit organization, serving members of
the public and health care professionals with information and education
about caring for the dying and bereaved. It provides information
about good hospice and palliative care, information and referrals
to hospices and palliative care organizations in the U.S., and help
discussing issues related to caring for the dying and bereaved.
Hospice Foundation of America
1621 Connecticut Ave., N.W., Ste. 300
Washington, D.C. 20009
1-800-854-3402
http://www.hospicefoundation.org
With programs for heath care professionals, and individuals "who
are coping with issues of caregiving, hospice selection, terminal
illness, and grief."
Institute for the Study of Aging
1414 Ave. of the Americas, Ste. 1502
New York, New York 10019
(212) 935-2402
http://www.aging-institute.org/
www.hospicecare.com
Intergenerational Innovations
3200 N.E. 125th St., Ste. 1
Seattle, Washington 98125
(206) 525-8181
http://www.intergenerate.org
A nonprofit organization that develops and implements programs and
activities connecting youth and the elderly in volunteer service
to each other.
International Longevity Center
60 E. 86th St.
New York, New York 10028
(212) 288-1468
http://www.ilcusa.org/
International Psychogeriatric Association
550 Frontage Rd., Ste. 3759
Northfield, Illinois 60093
United States
(847) 501-3310
http://www.ipa-online.org
John Douglas French Alzheimer's Foundation
11620 Wilshire Blvd., Suite 270
Los Angeles, California 90025
(310) 445-4656
http://www.jdfaf.org/
Kaiser Family Foundation
2400 Sand Hill Rd.
Menlo Park, California 94025
(650) 854-9400
Main Website: http://www.kff.org/
State Health Facts Website: http://www.statehealthfacts.kff.org/
Conducts policy research on health and health policy issues. The
website also provides resources on the health benefits available in
each state.
Kennedy Institute of Ethics at Georgetown University
Georgetown University
Washington, D.C. 20057
(202) 687-8099
http://kennedyinstitute.georgetown.edu/
Little Brothers-Friends of the Elderly
954 W. Washington Blvd., 5th Fl.
Chicago, Illinois 60607-2224
(312) 829-3055
http://www.littlebrothers.org
A national, non-profit, volunteer-based organization "committed
to relieving isolation and loneliness among the elderly."
Meals On Wheels Association of America
203 S. Union St.
Alexandria, Virginia 22314
(703) 548-5558
http://www.mealsonwheels.org/
Includes a list of local chapters of the volunteer program that
provides meals to the homebound.
Medicare Rights Center
1460 Broadway, 17th Floor
New York, New York 10036
(212) 869-3850
http://www.medicarerights.org
An independent source of health care information and assistance for
people with Medicare, "MRC provides