HRSA 2006 Ryan White CARE Act Progress Report: On the Frontlines

 

Case Study: Hattiesburg, Mississippi

"I wanted to leave on Friday but my boyfriend didn't believe me when I told him I could feel the hurricane coming in my bones," says Avis. "But he's from Detroit. What does he know about hurricanes?

"Finally I talked him into coming to get us. It was about three o'clock on Saturday. I remember asking my mom, 'Do you think I should unplug the microwave before we leave?' and she said, 'Yeah, you might want to unplug it 'cause there might be a power surge when they turn the power back on.' I thought we'd be back in two or three days.

"There was me, my boyfriend, my mom, and my dog in that 1978 Thunderbird. We had two outfits and 250 bucks between us. We drove and drove and drove, except it was more like crawl and crawl and crawl. By the time we got to Hattiesburg, the wind was blowing so hard we had to stop.

accent graphic
Frontline (‘fr nt-,lin) n. The most advanced, ­responsible, or visible position in a field or activity.

"We rode out the storm in our car in a parking lot behind a Starbucks. There were lots of other people there, too. My boyfriend moved the car when the wind direction changed so that if one of the buildings blew down it wouldn't blow down on us. We hadn't eaten in about 12 hours, but we were too scared to be hungry."

In the next few days, Avis and her family were helped by people like the convenience store owner who opened his doors and said, "Take what you need." As the community moved into recovery mode, individuals like Avis were offered beds in an emergency shelter—although Avis wouldn't sleep in one because she refused to leave her dog alone in the car. As the days passed, she, like so many other people, had to accept the fact that she wasn't going home anytime soon. But like everyone's story, Avis's is unique. Avis is HIV-positive. She needed an HIV clinic. And when she opened the Yellow Pages to find one, the HIV clinic she needed was there.

A Call…

Today, the main site of the Southeast Mississippi Rural Health Initiative, Inc., is just a few miles south of downtown Hattiesburg, a Deep South college town of about 45,000—at least before Katrina. Since the hurricane, the population has grown by about 40 percent. "And it's still growing," says Kaye Ray, the clinic's CEO—an observation not lost on anyone trying to drive through the tree-lined streets of this now very crowded community.

The Southeast Mississippi Rural Health Initiative, Inc., clinics are available to hurricane evacuees like Avis, and to underserved residents throughout the southeast Mississippi region because of actions taken almost three decades ago by people who saw the frontlines in their own backyard. They weren't on the frontlines of AIDS—at least, not yet—but the frontlines of something else: the battle for health care for ­people without health insurance.

"People in many of the small, rural communities around Hattiesburg realized that ambulances were making runs to meet basic health needs," says Ray. "Patients were being taken by ambulances—in some cases, even by air ambulances—into the large hospital here in Hattiesburg. If the uninsured had basic health care in their community, most of these runs would have never been necessary."

Some of the individuals who took note of the problem coalesced into a united force. A diverse group of people—a doctor, elected officials, ordinary citizens—did far more than bear witness to a chronic shortage of health care services. They decided to act. In doing so, they spread a message that still rings loud and clear. As Ray says, "If you get like-minded people together, you can do this work—you can do something about a shortage of heath care in your community."

The individuals who built what is today the Southeast Mississippi Rural Health Initiative, Inc. realized that, first, they needed funding. And like most successful clinics, they became very good, very fast, at grappling with this issue. Through the Federal Rural Health Initiative, they received a planning grant, and built a consortium to evaluate need. Two years later, they applied for and received full funding. With it, they established what Ray describes as "our first three little clinics, in the small towns of Sumrall, Seminary, and New Augusta." Today, they have nine more, plus a pharmacy.

The frontlines in any battle for health care equity are constantly changing. By the mid-1990s the battle for primary care for the underserved in southeast Mississippi could not be fought outside the context of HIV/AIDS. "When we opened our Hattiesburg site in 1995, we knew that we would be the safety net provider for HIV," explains Ray. "There had been a private physician providing the care, but she moved to Jackson. By the time we applied for Ryan White [the Comprehensive AIDS Resources Emergency (CARE) Act] funding in 1999, we already had 69 patients. By the end of 2005, we had 424 HIV-positive clients—and an infant whose status is still indeterminate."

The growth rate continues. There were 14 new HIV-positive patients in January 2006 alone. All this and, Ray says, "We didn't know beans about HIV when we started."

Today, the poverty rate and insurance status among the Initiative's clients reflect the national epidemic and its ­ongoing march into minority and historically underserved communities. Of the Initiative's total clients, 37.0 percent are female and 73.4 percent are African-American, "a significant change from 10 years ago," notes Ray.

The similarities between the Initiative's clients and those seen nationwide do not stop with race, ethnicity, and gender. Poverty and lack of health insurance, whether they exist in southeastern Mississippi or on the south side of Chicago, bring with them a whole set of problems that must be addressed if sustained HIV/AIDS treatment is going to be a viable option. These problems often encompass previously unaddressed chronic health issues. They include mental health diagnoses that, in many cases, are a direct result of living a life in constant financial peril. In short, they create a hard-to-reach profile that, one might think, would cause staff burnout. But there seems to be none here.

…And a Calling

Almost every person on staff at the clinic said that they knew what they were getting into when they committed to this work and that their expectations were realistic. "You start anew each day," says Julie Trotter, a social worker, "and hope that you can help one person."

There's also a palpable level of team spirit and ­camaraderie at the clinic. It is clear that the staff members support each other and they love to do their work—even the patient advocate wading his way through level after level of bureaucracy to resolve why a patient has been refused his medicine.

For almost everyone at the clinic, working for severely underserved people is a passion. And for some, it's a mission. This includes Dr. Robert Moore, a brilliant man who has spent time at Yale and New York University, who first studied computer science but then went into medicine because he said he wanted a "people factor" in his work.

Moore is the program's clinical director, but he also has a second job. He's a Baptist minister. When asked if he sees any tension in his role as a clinician, treating people who engage in behaviors he might not approve of as a ­minister, Moore replies, "Tension? There is no tension." When asked what other pastors think of his work with people whom some call "sinful," he replies, "I don't know, and it doesn't ­matter." And when asked how to cope with those patients who don't take full advantage of what the Southeast Mississippi Rural Health Initiative, Inc. has to offer, he smiles and says, "The Bible commands us to be long-suffering. This is an opportunity for us to learn how to do that."

 

Southeast Mississippi Rural Health Initiative, Inc., 2005. Total number of clients with HIV:  425*	 Total number of new clients with HIV:  100*	 Proportion with private health insurance:  9%	 Proportion living at or below the Federal poverty level:  63%  *Includes one infant whose HIV status is indeterminate.

Woman having ear cheeked by doctor

Woman having throat checked by doctor.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Dr. Robert Moore
Did You Know? Section
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2,567 providers in the United States received CARE Act funding in 2004.

Approximately 8 percent of CARE Act providers in 2004 were federally funded community and migrant health centers.

An estimated 8,000 HIV-positive people were displaced by Hurricane Katrina.