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Last Name: VOID SEER ID: VOID Request Type: VOID |
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1973-2005 Limited-Use Data Agreement |
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It is of utmost importance to ensure the confidentiality of patients
who have been diagnosed with cancer. Every effort has been made to
exclude identifying information on individual patients from the
computer files. Certain demographic information such as sex, race,
etc. have been included for research purposes. It is mandatory that
all research results be presented/published in a manner which ensures
that no individual can be identified. In addition, there must be
no attempt to identify individuals from any computer file nor to link
with a computer file containing patient identifiers.
In order for the Surveillance, Epidemiology, and End Results Program to provide a limited-use or another version of data to you, it is necessary that you agree to the following provisions. 1. You will not use nor permit others to use the data in any way other than for statistical reporting and analysis for research purposes. The SEER Program must be notified if it is discovered that there has been any other use of the data. 2. You will not present/publish data in which an individual can be identified. You will not publish any information on a single individual including any information generated on an individual case by the case listing session of SEER*Stat. In addition, publication of small cell sizes should be avoided. 3. You will not attempt to link nor permit others to link the data with individually identified records in another data base. 4. You will not attempt to learn the identity of any person whose cancer data is contained in the supplied file(s).
5. If the identity of any person is discovered inadvertently, then
the following must be done: 6. You will not release nor permit others to release the data in full or in part to any person except with the written approval of the SEER Program. In particular, all members of the research team who have access to the data must have signed data-use agreements. 7. You will use appropriate safeguards to prevent use or disclosure of the information other than as provided for by this data-use agreement. If accessing the data from a centralized location on a time sharing computer system or LAN with SEER*Stat or another statistical package, you will not share your logon name and password with any other individuals. You will also not allow any other individuals to use your computer account after you have logged on with your logon name and password. 8. For all software provided by the SEER Program, you will not copy, distribute, reverse engineer, profit from its sale or use, or incorporate it in any other software system. 9. The source of information should be cited in all publications. The appropriate citation is associated with the data file used. Please see Suggested Citations on the SEER*Stat Help menu, or the Readme.txt associated with the ASCII text version of the SEER data (CD # 2). My signature indicates that I agree to comply with the above stated provisions.
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