Objectives:

1. To obtain informed consent from parents of infants, children, adolescents, and young adults newly diagnosed with cancer (and their child when appropriate) to enter their names and certain information concerning their child, including: their name, postal/zip code, social security number (SSN), date of birth, diagnosis, diagnosis date, institution, race, ethnicity, and sex into the Childhood Cancer Research Network. This is referred to as: Entry in the CCRN with consent but without permission for future contact.

   1.1 {For children under the age of majority at the time of parental consent:} Once the child reaches the age of majority, to obtain informed consent from that child to allow her/his name and other identifying information to continue to be available to the Childhood Cancer Research Network.

2. To obtain informed consent from parents of infants, children, adolescents, and young adults newly diagnosed with cancer (and the child when appropriate) for permission to be possibly contacted in the future to consider participating in non-therapeutic and prevention research studies involving the parents and/or the child. This consent includes the information collected in 1.1 (must include parent's and child's name) along with current address and telephone number. This is referred to as: Entry in the CCRN with consent including permission for future contact.

   • 2.1. {For children under the age of majority at the time of parental consent for future contact:} Once the child reaches the age of majority, to obtain informed consent for permission to be possibly contacted in the future to consider participating in non-therapeutic and prevention research studies. This consent includes the information collected in 1.1.2 (must include name) along with current address and telephone number.