Coffin-Lowry Syndrome Foundation
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Coffin-Lowry Syndrome Foundation
675 Kalmia Pl NW
Issaquah, WA 98027
Tel: 425-427-0939 (M-F after 6pm PST)
EMail: CoffinLowry@Gmail.com
http://clsf.info
Description: Clearinghouse for information on CLS. Provides a general forum for exchanging experiences, advice, and information with other CLS families. Works to facilitate referrals of newly diagnosed individuals and to encourage medical and behavioral research in order to improve methods of social integration of CLS individuals.
Organizations such as this one may focus on information, research, fundraising, advocacy and awareness programs, rehabilitation, or patient support. They are not part of the Federal Government and they may not be tax-exempt.
675 Kalmia Pl NW
Issaquah, WA 98027
Tel: 425-427-0939 (M-F after 6pm PST)
EMail: CoffinLowry@Gmail.com
http://clsf.info
Description: Clearinghouse for information on CLS. Provides a general forum for exchanging experiences, advice, and information with other CLS families. Works to facilitate referrals of newly diagnosed individuals and to encourage medical and behavioral research in order to improve methods of social integration of CLS individuals.
Organizations such as this one may focus on information, research, fundraising, advocacy and awareness programs, rehabilitation, or patient support. They are not part of the Federal Government and they may not be tax-exempt.
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