NBIA Disorders Association
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NBIA Disorders Association
2082 Monaco Court
El Cajon, CA 92019-4235
Tel: 619-588-2315
Fax: 619-588-4093
EMail: info@NBIAdisorders.org
http://www.NBIAdisorders.org
Description: Non-profit organization dedicated to providing assistance to families affected by neurodegeneration with brain iron accumulation (formerly called Hallervorden-Spatz Syndrome). The organization supports research and works to educate the public.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.
2082 Monaco Court
El Cajon, CA 92019-4235
Tel: 619-588-2315
Fax: 619-588-4093
EMail: info@NBIAdisorders.org
http://www.NBIAdisorders.org
Description: Non-profit organization dedicated to providing assistance to families affected by neurodegeneration with brain iron accumulation (formerly called Hallervorden-Spatz Syndrome). The organization supports research and works to educate the public.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.
National Institute of Neurological Disorders and Stroke
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