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| Sponsors and Collaborators: |
University of Pittsburgh Temple University University of Pennsylvania Geisinger Clinic Milton S. Hershey Medical Center |
|---|---|
| Information provided by: | University of Pittsburgh |
| ClinicalTrials.gov Identifier: | NCT00540475 |
Purpose
The Pennsylvania Interstitial Lung Disease State-wide Research Registry (PA-ILD) is a cooperative project between five medical centers to coordinate a team of investigators. The aim of this registry will be: 1) To assess the extent of lung fibrosis in the commonwealth of Pennsylvania 2) To provide better access of patients with pulmonary fibrosis in all regions of Pennsylvania to standard of care and diagnosis 3) To facilitate the translation of new therapeutic interventions from the bench to the bedside.
| Condition |
|---|
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Idiopathic Pulmonary Fibrosis |
| Study Type: | Observational |
| Study Design: | Case Control |
| Official Title: | The Pennsylvania Interstitial Lung Disease State-Wide Research Registry |
| Estimated Enrollment: | 9999 |
| Study Start Date: | September 2007 |
| Estimated Study Completion Date: | July 2010 |
The University of Pittsburgh Medical Center, Dorothy P. & Richard P. Simmons Center for Interstitial Lung Disease is the coordination center for the Pennsylvania Idiopathic Pulmonary Fibrosis Statewide Research Registry, the collaborative institutions include: the University of Pennsylvania Health System, Geisinger Health System, and Penn State Milton S. Hershey Medical Center.
The PA-IPF Registry developed into a web site that contains information for patients, health professionals, and families, as well as an Internet-based database that will store information about patients to provide them with guidance about care, research, and support groups close to the area in which they live.
Benefits for membership in the PA-IPF Registry include:
Eligibility| Ages Eligible for Study: | 18 Years and older |
| Genders Eligible for Study: | Both |
| Accepts Healthy Volunteers: | No |
| Sampling Method: | Non-Probability Sample |
Patients diagnosed with Idiopathic Pulmonary Fibrosis (IPF)
Inclusion Criteria:
Exclusion Criteria:
Contacts and Locations| Contact: Trisha R Black, BA | 1-866-9224IPF | blacktr@upmc.edu |
| Contact: Mindy J Seagriff, BA | 412-802-6860 | seagriffmj@upmc.edu |
| United States, Pennsylvania | |
| Dorothy P. & Richard P. Simmons Center for Interstitial Lung Disease | Recruiting |
| Pittsburgh, Pennsylvania, United States, 15213 | |
| Contact: Trisha R Black, B.A. 412-605-1550 blacktr@upmc.edu | |
| Contact: Kathleen O Lindell, PhD 412-802-3274 lindellko@upmc.edu | |
| Principal Investigator: Naftali Kaminski, M.D. | |
| Temple University | Recruiting |
| Philadelphia, Pennsylvania, United States, 19140 | |
| Contact: Anne Marie Kuzma, RN 215-707-4327 annemarie.kuzma@tuhs.temple.edu | |
| Principal Investigator: Gerard Criner, M.D. | |
| The Center for Health Research at Giesinger Health System | Not yet recruiting |
| Wilkes Barre, Pennsylvania, United States, 18711 | |
| Contact: Mary Ann Blosky, RN 570-214-9544 mblosky@geisinger.edu | |
| Principal Investigator: David E Fisk, M.D. | |
| Milton S. Hershey Medical Center | Not yet recruiting |
| Hershey, Pennsylvania, United States, 17033 | |
| Contact: Rebecca Bascom, M.D. 717-531-6525 rbascom@psu.edu | |
| Contact: Michael Benninghoff, M.D. mikebenninghoff@yahoo.com | |
| Principal Investigator: Rebecca Bascom, MD | |
| University of Pennsylvania Health System | Not yet recruiting |
| Philadelphia, Pennsylvania, United States, 19104 | |
| Contact: Susan Metzger, RN 215-662-3115 susan.metzger@uphs.upenn.edu | |
| Contact: Debra Smith 215-615-0276 debra.smith@uphs.upenn.edu | |
| Principal Investigator: Gergory Tino, M.D. | |
| Geisinger Wyoming Valley- Pulmonary Medicine | Not yet recruiting |
| Wilkes Barre, Pennsylvania, United States, 18711 | |
| Contact: Angela DeAntonio, M.D. 570-820-6111 adeantonio@geisinger.edu | |
| Principal Investigator: | Naftali Kaminski, MD | Director, Dorothy P. & Richard P. Simmons Center |
More Information
| Responsible Party: | Pennsylvania Idiopathic Pulmonary Fibrosis Research Registry ( Naftali Kaminski ) |
| Study ID Numbers: | PRO07040328 |
| Study First Received: | October 3, 2007 |
| Last Updated: | May 14, 2008 |
| ClinicalTrials.gov Identifier: | NCT00540475 |
| Health Authority: | United States: Institutional Review Board |
|
Idiopathic Pulmonary Fibrosis Interstitial Lung Disease |
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Lung Diseases, Interstitial Respiratory Tract Diseases Fibrosis |
Hamman-Rich syndrome Lung Diseases Pulmonary Fibrosis |
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Pathologic Processes |
