The Sickle Cell Disease and Newborn Screening Program is comprised of 17 funded community based sickle cell disease (SCD) projects and the SCDAA-National Coordinating and Evaluation Center project (NCEC). The community –based SCD projects partner with State newborn screening programs, comprehensive sickle cell treatment centers, and health care professionals to provide support to infants screened positive for SCD and trait and their families. The projects work cooperatively and with the Sickle Cell Disease Association of America’s (SCDAA) NCEC to implement a model program of SCD carrier follow-up to include notification, extended family testing, counseling and education of affected individuals and families.

The Sickle Cell Disease and Newborn Screening Program is administered by the Division of Services for Children with Special Health Needs in Health Resources and Services Administration's (HRSA) Maternal and Child Health Bureau (MCHB). For more information on MCHB programs, visit the Bureau's Web site at www.mchb.hrsa.gov