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Registry Data

Increasing the number of unrelated marrow donors and cord blood units on the Registry is one requirement of the C.W. Bill Young Cell Transplantation Program (Program). The Program’s contractor, the National Marrow Donor Program® (NMDP), works with its centers to increase the number of potential marrow donors and cord blood units.

The contractors for the National Cord Blood Inventory (NCBI) collect and store cord blood units that are made available through the Program to patients who need a transplant.

To help more people who have difficulty finding a matching donor, special emphasis is placed on finding marrow donors and cord blood units from these communities:

  • Black or African-American
  • American Indian or Alaska Native
  • Asian
  • Native Hawaiian or Other Pacific Islander
  • Hispanic or Latino

Recently, great strides have been made, and the likelihood of finding a match has increased dramatically for patients from all racial and ethnic groups. Data about the number of marrow donors and cord blood units on the Registry are reported annually, from October through September.


Figure 1.

Growth of Marrow Donors on the Registry


Line chart showing the growth of marrow donors on the Registry from 1988 through 2007
View larger image (new window)  Detailed Description [D]

The Registry contains nearly 7 million potential donors.

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Figure 2.

Growth of Cord Blood Units on the Registry

Line chart showing the growth of cord blood units on the Registry from 2000 through 2007
View larger image (new window)   Detailed Description [D]

The growth of cord blood units has increased significantly. In 2007, the Registry contained nearly 70,000 cord blood units; more than 2,000 of these units were from the NCBI.

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Figure 3.

Diversity of Cord Blood Units on the Registry


Pie chart showing the percentage of caucasian versus minority cord blood units on the Registry in 2007
View larger image (new window)   Detailed Description [D]

More than 27,000 cord blood units on the Registry in 2007 were from donors who identified their race or ethnicity as:

  • Black or African-American
  • American Indian or Alaska Native
  • Asian
  • Native Hawaiian or Other Pacific Islander
  • Hispanic or Latino
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Figure 4.


Diversity of Marrow Donors on the Registry


Pie chart showing the diversity of marrow donors on the Registry in 2007
View larger image (new window)   Detailed Description [D]

More than 1.8 million volunteers on the Registry in 2007 were from these racial and ethnic communities:

  • Black or African-American
  • American Indian or Alaska Native
  • Asian
  • Native Hawaiian or Other Pacific Islander
  • Hispanic or Latino
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Figure 5.


Marrow Donors on the Registry by Race and Ethnicity


As of September 30, 2007,  the race and ethnicity of potential marrow donors on the Registry were as follows:

Volunteer Marrow Donors on the Registry by Race
American Indian/Alaska Native Nearly 80,000 (1.0%)
Asian More than 450,000 (7.0%)
Black or African American More than 515,000 (8.0%)
Caucasian* More than 5 million (73.0%)
Native Hawaiian or Other Pacific Islander More than 8,700 (0.1%)
Multiple Race More than 180,000 (3.0%)
*Includes Caucasian donors who also have Hispanic or Latino ethnicity

Volunteer Marrow Donors on the Registry by Ethnicity
Hispanic or Latino (total number of volunteers indicating Hispanic or Latino ethnicity or race) More than 650,000 (10%)

 

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Figure 6.


Cord Blood Units on the Registry by Race and Ethnicity


As of September 30, 2007, the race and ethnicity of cord blood units on the Registry were as follows:

Cord Blood Units on the Registry by Race
American Indian/Alaska Native More than 150 (0.2%)
Asian More than 3,800 (6.0%)
Black or African American Nearly 4,500 (6.0%)
Caucasian* Nearly 41,900 (61.0%)
Native Hawaiian or Other Pacific Islander More than 60(0.1%)
Multiple Race More than 7,600 (11.0%)
*Includes cord blood units from a heritage including both Caucasian race and Hispanic or Latino ethnicity

Cord Blood Units on the Registry by Ethnicity
Hispanic or Latino (total number of volunteers indicating Hispanic or Latino ethnicity or race) More than 11,000 (16%)

 

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Last Updated: April 18, 2008

Registry Data
Registry data are reported from Oct. 1 - Sept. 30 by the National Marrow Donor Program® (NMDP), the contractor for the Registry.
Patient Outcomes
Find more information about outcomes using unrelated marrow donors or cord blood units from the Registry.
Successful Outcomes Depend on a Matching Donor
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