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System of Services for Children and Youth with Special Health Care Needs

Background: A goal of the grant programs supporting services for children and youth with special health care needs is to achieve critical systems outcomes set out in the Healthy People 2010 Goals that were developed to eliminate barriers to community inclusion for people with chronic health conditions and disabilities. A community based system of services is comprised of six outcomes:

  1. Families partner in decision making at all levels.
  2. CYSHCN have a medical home.
  3. CYSHCN have adequate insurance.
  4. Children are screened early and continuously.
  5. Community-based service systems are organized so families can use them easily.
  6. Youth with SHCN make successful transitions to all aspects of adult life.

Programs collect the data for those MCHB grantees involved in State-wide processes for implementation for such activities like participating in state-level task force, working with other State agencies, families and community partners, providing technical assistance or consultation, and providing financial resources to communities for systems development, among others. These data are collected on the CSHCN data form.

Program: Systems of Services for Individuals with Special Health Care Needs

Fiscal Year: 2006

d Chart titled, Percent of MCHB grantees that are involved in a State-wide process of implementing a community-based system of services for children and youth with special health care needs and their families
ProgramMCHB grantees that are involved in a State-wide process of implementing a community-based system of services for children and youth with special health care needs and their familiesMCHB grantees that are NOT involved in a State-wide process of implementing a community-based system of services for children and youth with special health care needs and their familiesTotal
Systems of Services for Individuals with Special Health Care Needs781492
% of Total84.8%15.2%--
CSHCN National Centers718
% of Total87.5%12.5%--
Family Professional Partnership/CSHCN Family to Family Health Information Centers516
% of Total83.3%16.7%--
Medical Home/CSHCN707
% of Total100%0%--
State Implementation Grants for Integrated Community Systems for CSHCN17118
% of Total94.4%5.6%--
Universal Newborn Hearing Screening421153
% of Total79.2%20.8%--