Data Sharing & Intellectual Capital (DSIC) Workspace

Workspace Meetings

• Schedule  (for teleconferences)

• Meeting Notes  (from teleconferences)

• Recent Face-to-Face Meeting Materials   (January 2008, May 2007)
• DSSF Web-cast Materials

Contact & Membership Information

• Contact Information  (for workspace and SIG leads)

• DSIC Participating Organizations

• Documents  (internal working documents for the workspace)

• DSIC Listserv - sign up here

Proprietary SIG: The Proprietary SIG (PropSIG) is part of the DSIC Workspace and is concerned with intellectual property matters that affect both the distributino of open source software and data sharing.

Regulatory SIG: The Regulatory SIG (RegSIG) is focused on legal, regulatory and policy issues relating to human subjects research, IRBs, patient privacy, and data security.

Data Sharing and Security Framework Bundle Tools and Capabilities. For more information and a complete list of products visit the caBIG™ Tools section.

• Policies
  • Data Sharing and Security Framework: Provides an organization with a conceptual framework adn implementing tools that facilitate an organization's data sharing activities. The DSSF implementing tools include a decision support tool that uses four types of factors to assess the sensitivity of any given dataset and to determine the desired data controls
    • Data Sharing and Security Framework  [v3 released 01.07.2008]
    • Data Sharing Plan Guideline  [v2 released 01.09.2008]

Additional data sharing related Publications and Guidance

• Conflict of Interest Disclosure
  • caBIG™ Conflict Of Interest Disclosure Policy  [v1 released 01.10.2006]
• Coordination with NIH & NCI
  • Response to Office of Biorepositories and Biospecimen Research (OBBR) regarding its First Generation Guidelines for NCI-Supported Biorepositories   [v1 released 06.29.2006]
  • Response_to_NIH_on_proposed_GWAS_data_sharing_policy  [v1 released 11.30.2006]
• Industry Participation
  • caBIG™ Industry Participation Policy: Guidelines intended to support the successful participation of commercial organizations in caBIG™ meetings, teleconferences, and other activities sponsored by NCI or by NCI-funded caBIG™ participants. [v1 released 05.05.2006]
• Institutional Review Board (IRB)
  • caBIG™ IRB Informational Teleconference Presentation: A presentation to IRB representatives on how the DSIC Workspace is identifying and addressing compliance needs related to patient confidentiality, consent, and authorization. Audience included IRB representatives of cancer centers that participate in DSIC Workspace. [v1 released 02.22.2006 ]
• Publications
  • Policy on caBIG™ Publications Outlines the policies and procedures surrounding the publication of caBIG™-related documents [v1 released 01.10.06]
  • Statement on Academic Publications Related to caBIG™   A statement presenting a consensus view of principles endorsed by the caBIG™ community for the development of manuscripts prepared for submission to peer-reviewed journals that describe research using software, data repositories, or other resources funded by the National Cancer Institute (NCI) under its caBIG™ initiative [v1 released 05.16.2006]
• Software Licensing
  • caBIG™ Model Software Agreement License  A model agreement that can be used by caBIG™ participant institutions to distribute caBIG™ software and related documentation [v2 released 01.07.2008]
  • caBIG™ Open Source Software Licensing Guidelines   Guidelines that can be used by caBIG™ participant institutions to distribute caBIG™ software and related documentation[v2 released 12.28.2007]

Archived Materials

Note: This page lists materials produced by the DSIC workspace. For a complete list visit the Policies, Guidelines, and Whitepapers section.