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This page provides information concerning the Large Population Studies study topic.
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A list of reports and correspondence related to this topic are provided below. This page also provides a summary of the sessions concerning this topic that have been held at SACGHS meetings so you can review the transcripts, presentation materials, and webcasts for the sessions that dealt with the topic.
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Reports and Correspondence |
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Policy Issues Associated with Undertaking A New Large U.S. Population Cohort Study of Genes, Environment, and Disease
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Top of Page |
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SACGHS Meetings |
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November 14, 2006 - Session on Large Population Studies |
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Presentation of Public Comments and Proposed Modifications to Draft Report on the Policy Issues Associated with Undertaking a Large U.S. Population Cohort Project on Genes, Environment and Disease
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Huntington F. Willard, Ph.D.
Chair, SACGHS Task Force on Large Population Studies
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Slides -
Webcast -
Transcript
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Public Comments |
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Webcast -
Transcript
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June 26, 2006 - Large Population Studies Session |
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Update on SACGHS's Draft Report on the Policy Issues Associated with Undertaking a Large U.S. Population Cohort Project on Genes, Environment and Disease |
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Dr. Tuckson |
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Webcast
Transcript
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Environmental Components of Gene-Environment Studies |
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David A. Schwartz, M.D., M.P.H.
Director
National Institute of Environmental Health Sciences |
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Slides
Webcast
Transcript
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Social and Behavioral Components of Environment in Gene-Environment Studies |
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John K. Hewitt, Ph.D.
Director
Institute for Behavioral Genetics
University of Colorado |
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Slides
Webcast
Transcript
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Q&A |
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Facilitator: Dr. Licinio |
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Webcast
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March 27, 2006 - Large Population Studies Session |
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Overview of Draft Report on Large Population Studies |
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Huntington F. Willard, Ph.D.
Chair, SACGHS Task Force on Large Population Studies |
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Slides
Webcast
Transcript
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Full Committee Discussion |
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Webcast
Transcript
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October 19, 2005 - Large Population Studies Session |
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Session Overview and Report from the SACGHS Task Force on Large
Population Studies |
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Huntington F. Willard, Ph.D.
SACGHS Task Force Chair |
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Slides
Webcast
Transcript
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Policy Perspectives from Members of the Scientific Community |
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Gerald R. Fink, Ph.D.
Professor of Genetics
Whitehead Institute for Biomedical Research
Massachusetts Institute of Technology |
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Slides
Webcast
Transcript
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Q&A |
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Webcast
Transcript
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Sharon Kardia, Ph.D.
Associate Professor of Epidemiology
Director, Public Health Genetic Program
University of Michigan School of Public Health |
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Webcast
Transcript
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Q&A |
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Webcast
Transcript
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Richard B. Marchase, Ph.D.
Vice President for Science Policy
Federation of American Societies for Experimental Biology |
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Slides
Webcast
Transcript
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Q&A |
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Transcript
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Roundtable Discussion with Presenters |
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Facilitator: Dr. Willard |
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Webcast
Transcript
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Public Comments |
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Webcast
Transcript
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Remarks of the Acting SACGHS Chair |
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Ms. Berry |
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Webcast
Transcript
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Exploring Mechanisms for Public Engagement |
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Joan A. Scott, M.S., CGC
Deputy Director
Genetics & Public Policy Center |
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Slides
Webcast 1
Webcast 2
Transcript
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Toby Citrin, J.D.
Adjunct Professor of Health Management and Policy
Director, Michigan Center for Genomics and Public Health
University of Michigan School of Public Health
E. Yvonne Lewis
Executive Director
Faith Access to Community Economic Development |
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Slides
Webcast
Transcript
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Mary Woolley, M.A.
President
Research!America |
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Slides
Webcast
Transcript
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Roundtable Discussion with Presenters |
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Facilitator: Kevin FitzGerald, S.J., Ph.D., Ph.D. |
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Webcast
Transcript
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Policy Perspectives from Members of the Bioethics Community |
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Henry T. Greely, J.D.
Deane F. and Kate Edelman Johnson Professor of Law
Stanford Law School |
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Webcast
Transcript
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Pilar Ossorio, Ph.D., J.D.
Assistant Professor of Law and Medical Ethics
Associate Director, Center for the Study of Race and Ethnicity in
Medicine
University of Wisconsin Law School |
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Slides
Webcast
Transcript
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Troy Duster, Ph.D.
Professor of Sociology
Director, Institute for the History of the Production of Knowledge
New York University |
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Webcast
Transcript
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Roundtable Discussion with Presenters |
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Facilitator: Ellen Fox, M.D. |
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Webcast
Transcript
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Discussion of Next Steps, Work Plan and Final Work Product for Large Population Studies |
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Facilitators: Dr. Willard and Ms. Berry |
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Webcast
Transcript
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March 1, 2005 - Session on Large Population Studies |
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Public Health Perspective on Large Population Studies of Human Genetic Variation, the Environment, and Common Disease |
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Gilbert S. Omenn, M.D., Ph.D.
Professor of Internal Medicine, Human Genetics and Public Health
University of Michigan |
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Slides
Transcript
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Overview of International and National Large Population Studies |
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Teri Manolio, M.D., Ph.D.
Director
Epidemiology and Biometry Program
National Heart Lung and Blood Institute |
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Slides
Transcript
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Ethical, Legal and Social Issues of Large Population Studies |
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Bartha Knoppers, Ph.D., L.L.B.
Professor of Law
Canada Research Chair in Law and Medicine
University of Montreal
(presented by Myl�ne Desch�nes, LL.M) |
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Slides
Webcast
Transcript
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Dichotomy Between Social Identity and Ancestry in Large Population Studies |
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Charles N. Rotimi, Ph.D.
Professor, Genetic Epidemiology
Acting Director, National Human Genome Center
Howard University |
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Slides
Webcast
Transcript
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The UK Biobank |
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John Newton, Ph.D.
Chief Executive Officer
UK Biobank |
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Slides
Webcast
Transcript
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Federal Perspectives on the Need for a Large Population Study |
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Ruth Brenner, M.D., M.P.H.
National Institute of Child Health and Human Development |
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Slides
Webcast
Transcript
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Stephan D. Fihn M.D., M.P.H.
Department of Veterans Affairs |
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Slides
Webcast
Transcript
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Alan Guttmacher, M.D.
National Human Genome Research Institute |
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Slides
Webcast
Transcript
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Muin J. Khoury, M.D., Ph.D.
Centers for Disease Control and Prevention |
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Slides
Webcast
Transcript
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Roundtable Discussion with Session Participants |
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Facilitator: Huntington Willard Ph.D., Large Population Studies Task Force Chair |
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Webcast
Transcript
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Committee Discussion and Next Steps |
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Facilitator: Dr. Willard |
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Webcast
Transcript
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October 19, 2004 - Discussion of Proposed Plans for Addressing SACGHS Priority Issues |
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Large Population Studies |
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Huntington F. Willard, Ph.D.
Member, SACGHS Task Force on Large Population Studies |
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Webcast
Transcript
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