Research & Clinical Trials

Links to Federal and non-federal information about research into rare diseases including ORD-supported research. When you enter most of the Web sites listed below, you will leave the ORD Web site. Please return to find more information about research resources, scientific conferences, genetics information and services, and other related information.

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ClinicalTrials.gov
A comprehensive database of current information about clinical research studies.

Cancer.gov: Clinical Trials
Information about clinical trials relating to cancer research.

Clinical Center Clinical Trials
Search the collection of research studies being conducted at the NIH Clinical Center.

NIH-maintained Database of Scientific Projects (CRISP)
A searchable database of federally funded biomedical research projects conducted at universities, hospitals, and research institutions.

The Rare Diseases Clinical Research Network
A clinical research network supported by NIH Institutes and Centers and the ORD.

Bench-to-Bedside Awards
Rare diseases bench-to-bedside medical research projects designed to speed translation of promising laboratory discoveries into new medical treatments.

Federal Resources

Office for Human Research Protections (OHRP)
Supports, strengthens, and provides leadership to the nation's system for protecting participants in research that is conducted or supported by the U.S. Department of Health and Human Services (HHS).

NIH Genetic Modification Clinical Research Information System (GeMCRIS)
Provides access to information about human gene transfer trials registered with the National Institutes of Health (NIH), including medical conditions under study, institutions where trials are being conducted, investigators carrying out these trials, gene products being used, route of gene product delivery, and summaries of study protocols.

NIH Office of Biotechnology Activities
Monitors human genetics research including ethical, legal, and social concerns and develops and implements NIH policies and procedures for the safe conduct of recombinant DNA activities and human gene transfer.

Office of Orphan Products Development, FDA
Promotes the development of products that demonstrate promise for the diagnosis and/or treatment of rare diseases or conditions.

Non-Federal Resource

CenterWatch World
Provides international listings of ongoing clinical trials and profiles of research centers and clinical trials service providers.





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