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Sponsored by: |
M.D. Anderson Cancer Center |
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Information provided by: | M.D. Anderson Cancer Center |
ClinicalTrials.gov Identifier: | NCT00508235 |
Primary Objectives:
Condition | Intervention |
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Neurofibromatosis |
Behavioral: Questionnaire |
Study Type: | Observational |
Study Design: | Case-Only, Prospective |
Official Title: | Quality of Friendships in Children With Neurofibromatosis: Relationship to Disease Severity |
Estimated Enrollment: | 100 |
Study Start Date: | December 2004 |
Estimated Primary Completion Date: | December 2009 (Final data collection date for primary outcome measure) |
Groups/Cohorts | Assigned Interventions |
---|---|
1
Patients with Neurofibromatosis, type 1 (NF-1) between the ages of 8 and 18 years old.
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Behavioral: Questionnaire
Questionnaire about the patient's relationship with their best friend.
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You (your) child will be asked to complete a short questionnaire (40 questions) about their relationship with their best friend. Doctors will review your (child's) medical chart to find out how severe the disease is, so that this may be compared to the answers you have (your child has) given on the friendship questionnaire.
This is an investigational study. About 90-100 children and adolescents with NF-1 will be asked to take part in this study. All will be enrolled at M.D. Anderson.
Ages Eligible for Study: | 8 Years to 18 Years |
Genders Eligible for Study: | Both |
Accepts Healthy Volunteers: | No |
Sampling Method: | Non-Probability Sample |
Study participants with Neurofibromatosis, type 1 (NF-1) between the ages of 8 and 18 years old.
Inclusion Criteria:
Exclusion Criteria: None
Contact: Bartlett D. Moore, PhD | 713-792-2454 |
United States, Texas | |
U.T.M.D. Anderson Cancer Center | Recruiting |
Houston, Texas, United States, 77030 | |
Principal Investigator: Bartlett D. Moore, PhD |
Principal Investigator: | Bartlett D. Moore, PhD | U.T.M.D. Anderson Cancer Center |
Responsible Party: | U.T.M.D. Anderson Cancer Center ( Bartlett D. Moore, PhD/Professor ) |
Study ID Numbers: | 2004-0791 |
Study First Received: | July 26, 2007 |
Last Updated: | October 29, 2008 |
ClinicalTrials.gov Identifier: | NCT00508235 |
Health Authority: | United States: Institutional Review Board |
Neurofibromatosis Quality of Friendships Disease Severity Questionnaire Survey |
Heredodegenerative Disorders, Nervous System Neoplastic Syndromes, Hereditary Neuromuscular Diseases Genetic Diseases, Inborn Neurofibroma Peripheral Nervous System Diseases |
Neurofibromatoses Neurodegenerative Diseases Neurofibromatosis type 1 Nerve Sheath Neoplasms Neurofibromatosis 1 Neurocutaneous Syndromes |
Neoplasms Neoplasms by Histologic Type Nervous System Diseases Neoplasms, Nerve Tissue |