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Multi-center Long-term Outcome of Juvenile Dermatomyositis

  • Principal Investigator:

    Dr. Angelo Ravelli, Italy

  • Study Design:

    Retrospective, cross sectional

  • Types & Number of IIM Studied:

    Juvenile Dermatomyositis, Juvenile Polymyositis (N = 300)

  • Entry Criteria:

  • IMACS Core Set Measures Included:

    All - Physician and Parent Global Activity and Damage Assessments, Manual Muscle Testing, Childhood Myositis Assessment Scale, [Childhood] Health Assessment Questionnaire, muscle enzymes, Myositis Disease Activity Assessment Tool; Myositis Damage Index, Health related Quality of Life by SF-36 and Child Health Questionnaire

  • Other Measures Included:

    Disease Activity Score, natural history, treatment, muscle biopsy, educational/ vocational achievement, illness outcome satisfaction

  • Primary Outcome:

    Remission vs. persistently active disease, Organ damage, Quality of Life

  • Study Duration:

    2 years

  • Comments:

    The study has not yet been funded, but is ongoing. Approximately 150 patients have been enrolled to date

  • Contact:

    Dr. Angelo Ravelli, Genova, Italy Tel.: +39-010-5636386; E-mail: angeloravelli@ospedale-gaslini.ge.it

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Last Reviewed: October 30, 2007