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     January 14, 2009 Volume 15, Number 2 First Published in June 1995     
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Upcoming CWD Conferences and Events
Toronto 2009   CWD Focus on Pumping
March 6 - 8, 2009
Marriott Toronto Eaton Centre
Toronto, Ontario, Canada
Diabetes Scholars Foundation Family Scholarships

Chicago 2009   CWD Focus on Technology
April 24-26, 2009
Renaissance Chicago North Shore Hotel
Chicago, Illinois
Diabetes Scholars Foundation Family Scholarships

Orlando 2009   Friends for Life 2009 Conference and Expo
July 7-12, 2009
Disney's Coronado Springs Resort
Lake Buena Vista, Florida
View the Friends for Life 2008 Video
Diabetes Scholars Foundation Family Scholarships

UK 2009   Friends for Life UK Conference and Expo
August 14-16, 2009
Beaumont House
Old Windsor, Berkshire, England

Reports from recent CWD conferences & events:
-- Marco Island, Bethesda, Quilt D.C. 2008, Orlando, Seattle
-- More Reports & Upcoming CWD Conferences and Events


Headlines
The Diabetes Scholars Foundation is offering scholarships for families from Canada to attend the Focus on Pumping: Toronto 2009 conference, to be held at the Marriott Toronto Downtown Eaton Centre in Toronto, Ontario, Canada from March 6-8, 2009. Applications must be received by February 20, 2009.

A group from TeamCWD participated in the 2009 Disney Marathon.

Ask FDA to Better Serve Diabetes Patient Needs is an online petition sponsored by clinicians, patients, and parents. Make your voice heard.

Families in California are urged to support the training of unlicensed school personnel to administer insulin to students with diabetes in California's schools.

You can vote in The 2008 Medical Weblog Awards Sponsored by Epocrates: Best Patient's Weblog Category. Six Until Me, Kerri Morrone Sparling's blog, is in the running.

We report on the CWD Focus on Best Practices conference, just concluded at the Marriott Marco Island Resort in Marco Island, Florida. We'll have more photos up in the coming weeks.

-- Applications for the 2009-2010 Diabetes Scholars Foundation College Scholarships are now online.

The 2009 Inspired by Diabetes competition has begun. Entries must be submitted by March 31, 2009. Note that for every contest entry, Lilly will donate money to IDF's Life for a Child program, which supports diabetes centers in developing countries that provide critically needed care and education for children with diabetes.

Visit Diabetes Handprint to submit the word in your hand. For every word submitted, OneTouch will donate $5 up to a maximum of $250,000 for the Diabetes Education and Camping Association (DECA) to support children's diabetes camps and to Taking Control of Your Diabetes (TCOYD) to support adult diabetes conferences. See also Annoucement about DiabetesHandprint.com and OneTouch® Teams With Online Diabetes Community To Launch Global Diabetes Handprint Project.

Vitamin D Supplementation in Early Childhood and Risk of Type 1 Diabetes: a Systematic Review and Meta-analysis. See also Vitamin D Lowers Diabetes Risk and Extra Vitamin D In Early Childhood Cuts Adult Diabetes Risk.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

Continuous subcutaneous insulin infusion leads to immediate, stable and long-term changes in metabolic control.

Prediction of Severe Hypoglycemia.

Subcutaneous glucose sensor values closely parallel blood glucose during insulin-induced hypoglycaemia.

The Family Support Network now includes over 3,900 families from 50 states and 76 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 678 panels.

-- Other news and information


Clinic
Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn about the work of Dr. Denise Faustman.


Chats
Nothing scheduled this week


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- Share recipes
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums
--  Mailing lists for readers from:
Australia New Zealand UK Finland

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.

Parents report that over 3,000 schools across the US support in-classroom blood glucose monitoring. Does your child's school? Check the Schools database and add information about your child's school.
-- Other information about diabetes and school


Featured Book of the Week

[RECOMMENDED!] Understanding Insulin Pumps & Continuous Glucose Monitors by H. Peter Chase, M.D., Jana Gaston, MS, CDE, RD, and Laurel Messer, RN, BSN. Published by the Children's Diabetes Foundation at Denver, 2007. ISBN 0-9675398-8-9. US$15.00 to U.S. addresses (includes shipping).

Book Cover Understanding Insulin Pumps & Continuous Glucose Monitors provides an excellent introduction to pump therapy and continuous sensors for anyone considering these tools and can serve as a reference guide for those already using pumps and sensors. The 124-page book is very easy to read and is filled with many helpful tables and charts that will guide you not only through beginning pump therapy but also as you seek to get the most from your pump. Parents will also appreciate the collection of forms in the back to help with pump therapy at school. Three chapters out of 18 are devoted to continuous sensing. In addition to an excellent introduction to sensors, Dr. Chase offers strategies for using the data from your sensor to improve diabetes care. A final chapter explains the work underway to develop an artificial pancreas. Understanding Insulin Pumps & Continuous Glucose Monitors is an excellent addition to anyone's diabetes care library. Highly recommended.

Children's Diabetes Foundation at Denver
777 Grant Street, Suite 302
Denver, CO 80203
(303) 863-1200
1-800-695-2873
(303) 863-1122 fax

-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
Last year, my daughter was hospitalized with high blood sugars that corrected themselves. She was diagnosed with MODY, but one doctor said they were caused by a virus. She has had four highs since. Could it still be MODY? (15 Jan 2009)
-- Answers to over 18,500 questions
-- What's your question?
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From the Diabetes Dictionary
Euglycemia
A normal level of glucose (sugar) in the blood. Compare to hyperglycemia and hypoglycemia.
-- More definitions


Surveys and Studies
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

Nemours is running a survey of parents of kids (up to age 18) with type 1 diabetes to understand how they learn about the potential long-term health risks of diabetes.

Researchers at Northwestern University are seeking participants in a study called Prevent Risks by Early interVEntion at Nighttime in Type 1 diabetes for Kidney Disease (PREVENTKD).

The University of Florida is studying Neulasta in patients with new onset type 1 diabetes.

Families are Needed Who Have an Infant Under age 5 Months or a Mother in the Last Trimester of Pregnancy and a Family Member with Type 1 Diabetes are highly encouraged to participate in the TrialNet NIP study.

NYU researchers are looking for teens with type 2 diabetes or teens with a BMI over 30, aged 14-19, for a study at the NYU Medical Center. The study involves two visits to the medical center, and includes cognitive testing (memory, etc.), a blood sample, and an MRI scan of the brain. Parental consent is necessary for those under 18. All volunteers will be financially compensated $100 for their time.

Behavioral specialists at the Joslin Diabetes Center and the University of Virginia seek help from parents who have children with diabetes from ages 6 to 11.

The University of California at Irvine has a new Exercise in Teens with Type 1 study.

Clinical Trials for Newly Diagnosed Type 1 Diabetes is seeking people ages 8-30 who have been diagnosed with type 1 diabetes within the past six weeks for the AbATE Trial.

The Type 1 Diabetes Genetics Consortium is seeking families with at least 2 siblings diagnosed with type 1 diabetes prior to age 35. They are also interested in having the parents participate, as well as other siblings without diabetes. In this study, researchers will be trying to identify genes influencing an individuals risk for developing type 1 diabetes. By furthering the knowledge of these genes, the researchers hope to prevent type 1 diabetes in the future.

Adult males with type 1 diabetes are needed for a study about Benfotiamine and Complications in New York.

A study on Autoantigen Vaccination In Human Type 1 Newly Diagnosed Diabetes Mellitus is seeking adults 18-35 who have been diagnosed with type 1 diabetes mellitus less than three months.

-- Other Studies


Diabetes Humor
Everynight at the dinner table our family askes what each of our "highs" and "lows" are (meaning best and worst part of each of our day). Going around the table we each tell of a typical thing, until we get to our 8 year old who was diagnosed 5 weeks prior. She starts laughing and states that her high was 554 and her low was 75 (her overall highs and lows during her 5 weeks of the diabetic world). Only a family with type 1 would understand.
-- More Humorous Tidbits

You know you're a parent of a child with diabetes when ...
... your son opens the car door at church and laughs because there's a test strip on the parking lot - and of course it's the type you use!
--More Parent Humor


Living With Diabetes
Photo
-- More children with diabetes
 

Hi, my name is Ashton. I was diagnosed with Type 1 diabetes on May 18, 2007. I live at home in Illinois with my Mommy and Daddy. It all started when Mommy and Daddy noticed a big change in the amount of liquids I was drinking and the number of diapers they were changing. That went on for a couple of days and then I was waking up in the morning soaked from head to toe (I think Mommy was getting mad because she had to keep washing my sheets).

So then Mommy and Daddy decided something wasn't right, they called the doctor. The nurse Mommy had talked to recommended bringing in a urine sample. So that night she took in a sample to the lab and the next morning she received a call from the doctor that they needed to take me in to get blood work because they said they did see some sugar and they wanted to make sure with the blood work. We then went to the doctor's office to wait for the results. When doctor walked in the room Mommy and Daddy knew right then it was diabetes. They broke down into tears and just hugged me so tight I really didn't know what was going on. So my doctor sent us to Peoria St Francis where I could get the treatment I needed.
-- Visit Ashton's page

 

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Current Poll

  At what age were you or your child diagnosed with diabetes?  
   

0 - 2 years

 
   

2 - 6 years

 
   

6 - 10 years

 
   

10 - 14 years

 
   

14 - 18 years

 
   

Over 18 years

 


 

Poll Results

 

At what age were you or your child diagnosed with diabetes?

 
     

0 - 2 years

 
 

12%

 

 
     

2 - 6 years

 
 

35%

 

 
     

6 - 10 years

 
 

25%

 

 
     

10 - 14 years

 
 

15%

 

 
     

14 - 18 years

 
 

6%

 

 
     

Over 18 years

 
 

3%

 

 
-- View Results & More Polls

Diabetes Marketplace
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Featured Recipe
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Maple Oatmeal Bars
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Top E-mailed Pages
1. Insulin Pump Therapy
2. Nick Jonas Reveals He Has Diabetes
3. Michael
4. Holiday Songs
5. Continuous Glucose Sensors
6. Mini-Dose Glucagon Rescue
7. The Law, Schools, and Your Child with Diabetes
8. Diabetes at School
9. Blood Glucose Meters
10. Ask the Diabetes Team
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Top Rated Pages
1.   Nick Jonas Reveals He Has Diabetes
2.   Sample 504 and IEP Plans
3.   Request Received
4.   Isomalt
5.   Children's Corner
6.   Chat Room Guest Login
7.   Scholarships
Top 20 Rated Pages

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com

Book cover
The Adventure of A Lifetime
Buy at The Diabetes Mall


Book Cover
NFL Veteran Jay Leeuwenberg Tackles Diabetes and Wins.
You can too!
Buy From The Publisher




Always remember that kids with diabetes are still kids
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Last Updated: Fri Jan 16 07:10:36 2009
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