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Alzheimer's Disease: Information for Children and Teenagers


Books for Children

1. What's Wrong With Grandma? A Family Experience With Alzheimer's.

Shawver, M. Amherst, NY: Prometheus Books. 1996. 62 p.

Available from Prometheus Books. 59 John Glenn Drive, Amherst, NY 14228-2197. (800) 421-0351; (716) 691-0133; WEB: www.prometheusbooks.com. PRICE: $17.00. ISBN: 1573921076.

This book for young children tells the story of a family's struggle with Alzheimer's disease (AD); and it is told by the family's youngest child, Ellen. Along with the rest of her family, Ellen tries to figure out what is happening to her beloved and once independent grandmother. She chronicles her Grandmother's episodes of wandering, memory loss, and paranoia; and her inability to complete her functions of daily life. The book describes the physical, mental, and emotional consequences these changes have on the family. After hearing the formal diagnosis of AD, Ellen and the rest of the family are better able to cope with the grandmother's behavior as well as their own feelings of sadness, frustration, and grief. (AZBK05962)

2. Remember Me.

Wild, M. Morton Grove, IL: Albert Whitman and Company. 1995. 30 p.

Available from the Albert Whitman and Company. 6340 Oakton Street, Morton Grove, IL 60053-2723. (800) 255- 7675; (847) 581-0033; FAX (847) 581-0039; WEB: www.awhitmanco.com. PRICE: $14.95. ISBN: 0807569348.

This illustrated children's book, told from the perspective of the grandmother, features the unique relationship between a grandmother and her granddaughter, Ellie. As the grandmother is coping with memory loss affecting her daily activities and responsibilities, Ellie implores her not to forget about the special times they shared together. The grandmother eventually realizes that she still can remember some things and have a happy relationship with her granddaughter. (AZBK05853)

3. Through Tara's Eyes: Helping Children Cope With Alzheimer's Disease.

Baumann, K.; Conners, E. Rockville, MD: American Health Assistance Foundation. 1995. 36 p.

Available from the American Health Assistance Foundation, Order Department. 22512 Gateway Center Drive, Clarksburg, Maryland 20871. (800) 437-2423; (301) 948-3244; FAX: (301) 258-9454; WEB: www.ahaf.org. PRICE: $5.00.

This book for children is told from the perspective of a little girl, Tara, whose grandmother has Alzheimer's disease (AD). Initially, Tara is unaware that anything about her grandmother has changed, but she does notice that her mother, and later her father, are treating her grandmother differently. Eventually, the grandmother's memory loss and strange behavior prompt Tara to ask her parents what is wrong with her grandmother. They explain AD to Tara in simple terms, emphasizing that it cannot be caught from the sick person. Because her parents support her when she is angered by her grandmother's losses of memory and ability, and because they explain the importance of loving her grandmother even if she has changed, Tara learns to express love in ways her grandmother can still appreciate. The authors provide nine activity sheets for children to complete to clarify information about AD and family care. A special note to parents and teachers prefaces the story with a discussion of ways children may react to AD in a loved one. (AZBK05948)

4. Memory Box.

Bahr, M. Morton Grove, IL: Albert Whitman and Company. 1995. 32 p.

Available from the Albert Whitman and Company. 6340 Oakton Street, Morton Grove, IL 60053-2723. (800) 255-7675; (847) 581-0033; FAX: (847) 581-0039; WEB: www.awhitmanco.com. PRICE: $5.95. ISBN: 0807550531.

This book for children is told from the prospective of a young boy, Zach, who visits his grandparents for a summer vacation at their house on the lake. The first days of the visit are so good that the grandfather tells Zach that he wants to preserve them in the memory box he and Zach should fill. He tells Zach that the memory box is a family tradition in which a young family member and an old one store things that remind them of special memories and events. Zach finds the idea unsettling, but cooperates enthusiastically in filling the family's special box. In the next few days, changes in his grandfather's behavior occur, including wandering away without his shoes, and Zach's grandmother explains that his grandfather has Alzheimer's disease. Zach understands the importance of the memory box and plans to maintain it to comfort his family and to help take care of his grandfather when he can. (AZBK05956)

5. Wilfrid Gordon McDonald Partridge.

Fox, M. La Jolla, CA: Kane/Miller Book Publishers. 1985. 32 p.

Available from Kane/Miller Book Publishers. P.O. Box 8515, La Jolla, CA 92038. (800)968-1930; FAX (858) 456-9641; WEB: www.kanemiller.com. PRICE: $14.95 hardcover, ISBN: 0916291049; $7.95 paperback, ISBN: 091629126X; $6.95 Spanish version in paperback; plus $3.50 for shipping and handling. 

This illustrated children's book tells the story of a young boy named Wilfrid and his relationship with the residents of a nursing facility next door to his home. He is especially fond of Miss Nancy, and sets out to help her regain her memory. When Wilfrid brings Miss Nancy a basket of special things about which he has strong memories, it triggers memories from her own childhood. (AZBK05855)

Books For Teenagers

6. Just for Teens: Helping You Understand Alzheimer's Disease.

Chicago, IL: Alzheimer's Disease and Related Disorders Association, Inc. 1997. 2 p.

Available from the Alzheimer's Association. 919 North Michigan Avenue, Suite 1000, Chicago, IL 60611-1676. (800) 272-3900; (312) 335-5796; TDD (312) 335-8882; FAX (312) 335-1110; WEB: www.alz.org. Stock Number ED-234-Z. PRICE: Free.

This fact sheet is designed to help teenagers understand Alzheimer's disease (AD). It explains how AD affects a person's ability to think and do things, and why people with AD sometimes act confused, scared, or angry around others. It also explains how caring for someone with AD affects the family. Suggestions are offered to help teenagers cope with their own feelings about the situation and participate in activities with the person who has AD. Suggestions include keeping a journal and making a memory box.  (AZBR06920)

Audiovisual Material and Resource Guide

7. Someone I Love Has Alzheimer's Disease.

Newton, MA: Lifecycle Productions. 1993. 1/2" VHS videocassette (17 min), col; and curriculum guide, 45 p.

Available from Terra Nova Films.  9848 S. Winchester Ave., Chicago, IL 60643. (800) 779-8491; FAX (773) 881-3368; WEB: www.terranova.org. PRICE: $149.00 purchase, $45.00 rental.

Shelley Fabares narrates this videotape discussing how Alzheimer's disease (AD) can affect young family members. Children affected by the disease discuss their feelings and reactions to the changes they witness in their loved one affected by the disease. Some of the children discuss their participation in a unique support group designed specifically for children. The children emphasize the importance of learning about the disease, communicating with others about it, knowing that they are not alone and that there is help for them, and giving care and affection to the relative with AD. Several vignettes show children involved in caregiving for patients with different stages of AD. An accompanying manual provides an overview of the disease and its symptoms, typical questions children ask, guidelines for how parents and professionals can respond, terms used in relation to AD, and helpful reading materials for families. The manual also provides suggested activities for children that can be used individually or in a support group setting to stimulate learning about the brain and AD and to encourage discussion of possible caregiving scenarios and feelings. (AZAV04791)

8. Talking With Children and Teens About Alzheimer's Disease: A Question and Answer Guidebook for Parents, Teachers, and Caregivers.

McCrea, J.M.; et al. Pittsburgh, PA: University of Pittsburgh, Center for Social and Urban Research. 1992. 73p.

Available from Generations Together, University of Pittsburgh, Center for Social and Urban Research. 121 University Place, Suite 300, Pittsburgh, PA 15260. (412) 648-7150. FAX: (412) 624-7446; WEB: www.gt.pitt.edu. PRICE: $12.50; plus $3.00 for shipping and handling.

This handbook was developed for use by parents, teachers, and caregivers to help answer the questions children and teenagers have about Alzheimer's disease and to help them interact with relatives and other people with dementia. It describes approaches to discussing Alzheimer's disease with preschool children, school age children, and teenagers. It provides a series of questions children might ask, dealing with such topics as personality changes, awareness, behavior, memory loss, and how a child can respond appropriately to unfamiliar behavior by and interact with the person with Alzheimer's disease. Examples are given of activities that children or teenagers can enjoy with an older person with dementia. This handbook lists resources, providing the names of organizations, books for various age levels, and audiovisuals. (AZDC03902)




Page last updated Nov 19, 2008

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