|| End of Life Interest Group
End of Life Interest Group
The purpose of this Interest Group is two-fold:
1) To provide a means for DHHS agencies interested in end-of-life research to coordinate planning activities. For example, the interest group sponsored a panel discussion and open forum to discuss the clinical implications of the PBS series "On Our Own Terms". Another event was a workshop where clinicians and researchers discussed the state of the science and future research directions for end of life in older populations.
2) To provide a means for communicating these DHHS activities to the broader community who is interested in end-of-life research. This website is one way we communicate. The other is through a list-serv where targeted announcements such as notices of conferences & workshops, new funding initiatives, etc. will be posted.
NINR, NIA, AHRQ, NCCAM, NCI and SAMHSA, HRSA have played an active role in the interest group and are cosponsoring this program. Membership is limited to DHHS staff. If you work for an DHHS agency and want to join the interest group please click on "Join the SIG" above.
Means to a Better End: A Report on Dying in America Today
The first state-by-state statistical review of availability and use of good end-of-life care. It reveals tremendous shortfalls in care, showing that Americans have only a fair chance of finding good care for themselves or loved ones when facing a life-threatening illness.
Clinical Guide on Supportive and Palliative Care for People with HIV/AIDS
Read online or order a free copy from HRSA's Information Center.
End of Life Training modules available on-line
Submit the on-line application form to request free copies. There are six modules in the series:
1. Historical Perspectives of Dying and Death in America
2. Ethical and Legal Concerns
3. Pain Management
4. Communication Skills at End-of-Life
5. Imminent Death
6. Grief, Loss, and Bereavement
Describing Death in America: A new Publication from The Institute of Meicine National Research Council of the National Academies.
Of Interest:Search NCI's or NIH's Calendars for events related to End-of-Life issues.
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