Kidney Disease Research Updates
Spring/Summer 2007

Featured in the NIDDK Reference Collection

Autosomal Recessive Polycystic Kidney Disease

Polycystic kidney disease (PKD) comes in two hereditary forms: autosomal dominant PKD, the most common of all life-threatening genetic diseases; and autosomal recessive PKD, or ARPKD, a relatively rare disease often causing significant mortality in the first month of life.

Your Child, Your Family, and Autosomal Recessive Polycystic Kidney Disease, a 26-page brochure from the PKD Foundation, answers basic questions about ARPKD, categorizing the topics into seven areas: general information, genetics, diagnosis, prenatal diagnosis, medical care, family supports, and research efforts. The brochure also briefly summarizes the goals and work of the PKD Foundation, a nonprofit organization devoted to research programs to determine the cause of PKD and to improve clinical treatment and discover a cure. The brochure is available for $15—$10 for members—from the PKD Foundation, 9221 Ward Parkway, Suite 400, Kansas City, MO 64114, 1–800–PKD–CURE (753–2873), pkdcure@pkdcure.org.

For additional resources about kidney disease, visit the NIDDK Reference Collection at http://catalog.niddk.nih.gov/resources. The Reference Collection is a free, online, searchable database to help health care professionals, health educators, patients, and the general public find educational materials not typically referenced in most databases.

NIH Publication No. 07–4531
June 2007

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