United Leukodystrophy Foundation

United Leukodystrophy Foundation
2304 Highland Drive
Sycamore,  IL  60178
Tel: 815-895-3211 800-728-5483
Fax: 815-895-2432
EMail: office@ulf.org
http://www.ulf.org

Description: Nonprofit voluntary health organization dedicated to providing patients and their families with information; assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness, and acting as an information source for health care providers. Promotes supports research into causes, treatments, and prevention of the leukodystrophies.

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National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.