Joubert Syndrome Foundation & Related Cerebellar Disorders

Joubert Syndrome Foundation & Related Cerebellar Disorders
2481 Orangewood Place
Simi Valley,  CA  93065
Tel: 805-527-1007
EMail: info@jsfrcd.org
http://www.jsfrcd.org

Description: Non-profit organization that offers information and support to families worldwide. Sponsors a conference, publishes a quarterly newsletter, and works to increase public awareness.

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National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.