Association for Glycogen Storage Disease

Association for Glycogen Storage Disease
P.O. Box 896
Durant,  IA  52747
Tel: 563-785-6038
Fax: 563-785-6038
EMail: maryc@agsdus.org
http://www.agsdus.org

Description: International not-for-profit organization that acts as a focus for individuals with glycogen storage diseases and their families. Works to foster communication between family members, professionals, and others for the purpose of support and information sharing.

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National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.