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Patient-Reported Outcomes Measurement Information System (PROMIS):
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How has information about PROMIS been disseminated?
In September 2006, the NIH sponsored a conference on PROMIS to publically introduce the
project to the scientific community. Participants discussed a range of conceptual,
clinical, and methodological aspects of assessing and using patient-reported outcomes
(PROs) in clinical research and practice. In March 2008, the NIH will sponsor a second
PROMIS Conference:
Improving Measurement of Patient Reported Outcomes -- New Tools and the Science Behind
Them.
In its May 2007 issue, the journal Medical Care published a special
supplement devoted to the PROMIS project and the instrument development process.
The supplement covered the following topics:
- Developing the Patient-Reported Outcomes Measurement Information System (PROMIS).
- The Patient-Reported Outcomes Measurement Information System (PROMIS): Progress of an NIH Roadmap Cooperative Group During its First Two Years.
- Evaluation of Item Candidates: The PROMIS Qualitative Item Review.
- Psychometric Evaluation and Calibration of Health-Related Quality of Life Item Banks: Plans for the Patient-Reported Outcomes Measurement Information System (PROMIS).
- Item Response Theory Analyses of Physical Functioning Items in the Medical Outcomes Study.
- Practical Issues in the Application of Item Response Theory: A Demonstration Using Items From the Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales.
- Considerations for Developing Interfaces for Collecting Patient-Reported Outcomes That Allow the Inclusion of Individuals With Disabilities.
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