How has information about PROMIS been disseminated?

In September 2006, the NIH sponsored a conference on PROMIS to publically introduce the project to the scientific community. Participants discussed a range of conceptual, clinical, and methodological aspects of assessing and using patient-reported outcomes (PROs) in clinical research and practice. In March 2008, the NIH will sponsor a second PROMIS Conference: Improving Measurement of Patient Reported Outcomes -- New Tools and the Science Behind Them.

In its May 2007 issue, the journal Medical Care published a special supplement devoted to the PROMIS project and the instrument development process. The supplement covered the following topics:

• Developing the Patient-Reported Outcomes Measurement Information System (PROMIS).
• The Patient-Reported Outcomes Measurement Information System (PROMIS): Progress of an NIH Roadmap Cooperative Group During its First Two Years.
• Evaluation of Item Candidates: The PROMIS Qualitative Item Review.
• Psychometric Evaluation and Calibration of Health-Related Quality of Life Item Banks: Plans for the Patient-Reported Outcomes Measurement Information System (PROMIS).
• Item Response Theory Analyses of Physical Functioning Items in the Medical Outcomes Study.
• Practical Issues in the Application of Item Response Theory: A Demonstration Using Items From the Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales.
• Considerations for Developing Interfaces for Collecting Patient-Reported Outcomes That Allow the Inclusion of Individuals With Disabilities.