NIH Office of Technology Transfer - Rare Diseases
Technologies related to rare diseases or conditions available for commercial licensing are listed under the related disease or condition.

NIH Office of Technology Transfer - Neglected Diseases
A searchable database of technologies available for licensing from NIH and U.S. universities.

Grants – Office of Extramural Research
NIH medical and behavioral research grant policies, guidelines, and funding opportunities including the NIH Guide for Grants and Contracts.

National Disease Research Interchange (NDRI), National Rare Disease Biospecimen Resource (NRDBR)
Provides researchers with organs, tissues, blood, and DNA or cell lines donated from people with rare diseases; works with patient advocacy groups; and provides a link between patient advocacy groups, patients with rare diseases, and researchers of those disorders.

Research Training and Scientific Resources at NIH
Information about research and training, laboratory resources, computational biology, and other Federal resources.

National Center for Research Resources (NCRR)
NCRR supports biomedical technology, clinical research, comparative medicine, and research infrastructure.

NIH Research and Training Opportunities

National Center for Biotechnology Information (NCBI)
Information about NCBI public databases, research in computational biology, software tools for analyzing genome data, and biomedical information.

NIH Small Business Funding Opportunities (SBIR and STTR)
Resources available through the Small Business Innovation Research and the Small Business Technology Transfer programs.

National Cancer Institute (NCI) Research Resources
A directory of research tools and resources for cancer research.

National Eye Institute (NEI) Resources
Includes databases, statistics, ophthalmic collections, and opportunities in research.

National Heart, Lung, and Blood Institute (NHLBI) Online Resources for Researchers
Databases, biologic resources, clinical and population studies, new study design resources, and training opportunities.

National Human Genome Research Institute’s (NHGRI) Online Research Resources
Research resources developed at and outside of the NHGRI relating to all aspects of the human and animal genome programs.

National Institute on Aging (NIA) Resources
Cell repositories, sharing plans, NIA-wide scientific resources, and non-NIA repositories of animal models for Alzheimer’s and neurodegenerative disorders.

National Institute on Alcohol Abuse and Alcoholism (NIAAA) Research Information
Database resources, graphics gallery, research guidelines, resources, related Web sites, and

National Institute of Allergy and Infectious Diseases (NIAID) Resources for Researchers
Information on the divisions, interdivision programs, microbiology, infectious diseases, and NIAID Pathogen Genomics Resources for Researchers.

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS): Health Topics
Genetic databases, bioinformatic tools, flow cytometric resources, microarray Web resources, and research guidelines.

National Institute on Deafness and Other Communication Disorders (NIDCD) Resources for Scientists
Information about NEIBank ear libraries, model organisms, stem cells, and the trans-NIH Mouse Initiative.

National Institute of Dental and Craniofacial Research (NIDCR) Research Resources
Information about the Dental, Oral and Craniofacial Data Resource Center for oral health surveys and the Head and Neck Tissue Array (HNTA) International Initiative.

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) Resources for Researchers
Information on how resources can be made available to researchers including reagents, biological samples, specialized animal phenotyping cores, and bioinformatics.

National Institute of Environmental Health Sciences (NIEHS) Research Resources
Information about the NIEHS Division of Intramural Research Core Facilities and services.

National Institute of General Medical Sciences (NIGMS) Genetic and Genomic Resources
Answers questions about these research resources.

Human Genetic Cell Repository
Answers questions about these research resources.

National Institute of Neurological Disorders and Stroke (NINDS) Resources for Scientists
Information about animal models, research reagents, clinical and translational resources, gene expression, cell/tissue, and DNA.

National Institute of Biomedical Imaging and Bioengineering (NIBIB) Biotechnology Resource Centers
Information about Biomedical Technology Resource (P41) Centers and how biomedical investigators who have NIH-supported projects can gain access to the newest and most advanced technologies, techniques, and methodologies.

NICHD Resources for Researchers
Links to bioengineering, human tissue repositories, disease models, neuroscience research resources, and other resources for research.

Office of Orphan Products Development, FDA
Promotes the development of products that demonstrate promise for the diagnosis and/or treatment of rare diseases or conditions.

FDA Center for Biologics Evaluation and Research (CBER)
Information about Food and Drug Administration (FDA) regulation of biological products.

FDA Center for Devices and Radiological Health (CDRH)/Humanitarian Use Devices
Information about Food and Drug Administration (FDA) regulation of medical devices and radiologic health and devices that benefit patients with a rare disease that affects fewer than 4,000 individuals in the United States per year.

FDA Center for Food Safety and Applied Nutrition (CFSAN)
Information about research and laboratory programs in toxicology, applied nutrition, and food safety including medical foods.

grants.gov
A single government-wide source for information about grants programs across the Federal government.

HCUP Main Page
The Healthcare Cost and Utilization Project (HCUP, pronounced "H-Cup") is a family of health care databases and related software tools and products developed through a Federal-State-Industry partnership and sponsored by the Agency for Healthcare Research and Quality (AHRQ). HCUP databases bring together the data collection efforts of State data organizations, hospital associations, private data organizations, and the Federal government to create a national information resource of patient-level health care data (HCUP Partners). HCUP includes the largest collection of longitudinal hospital care data in the United States, with all-payer, encounter-level information beginning in 1988. These databases enable research on a broad range of health policy issues, including cost and quality of health services, medical practice patterns, access to health care programs, and outcomes of treatments at the national, State, and local market levels.

Histiocytosis Association of America’s Research Program
The Histiocytosis Association of America’s Research Program seeks to attain its goal of a cure through a variety of efforts, the foremost being the direct funding of both basic and clinical scientific research projects. Through the annual Research Grant Awards, the Association supports basic scientific research into understanding the function of cells and the disease process.

Muscular Dystrophy Association (MDA)
MDA's research program is a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular disease. MDA combats some 40 neuromuscular diseases through a worldwide extramural research program that includes basic, clinical and translational research efforts, as well as a clinical research training grant program. MDA's focus is not simply to fund good science, but to fund good science aimed at developing treatments and therapies for neuromuscular disease.

National Ataxia Foundation (NAF)
The National Ataxia Foundation funds four types of research grants for new and innovative studies that are relevant to the cause, pathogenesis or treatment of the hereditary or sporadic ataxias.

National Organization for Rare Disorders (NORD)
NORD's Research Program provides seed money grants to academic scientists for clinical studies related to the development of diagnostics or treatments of rare diseases. Requests for proposals are posted once a year in the late winter or early spring. NORD's Research Program also includes the NORD/Roscoe Brady Lysosomal Storage Diseases Fellowships.

NephCure Foundation
The NephCure Foundation is the only organization devoted exclusively to supporting research into the cause of and cure for Idiopathic Nephrotic Syndrome and primary Focal Segmental Glomerulosclerosis (FSGS). Comprised of patients, their families and friends, researchers, physicians and other healthcare professionals, NephCure has a growing program of scientific support.

The Progeria Research Foundation (PRF)
Awards of up to $50,000 per year, for up to two years are available from PRF to support investigators for basic science research aimed at developing effective treatments and/or cure for Hutchinson-Gilford Progeria Syndrome and its aging related disorders. Principal investigators must hold post-doctoral positions or beyond. Awards will be granted only to applicants affiliated with institutions with 501(c)3 status, or the equivalent for foreign institutions.

United Mitochondrial Disease Foundation (UMDF)
The UMDF promotes research and education for the diagnosis, treatment, and cure of mitochondrial disorders and provides support to affected individuals and families. Through its Research Program, UMDF awards more than $1 million per year in grants to scientists conducting basic research into mitochondrial disorders as well as for clinical studies focusing on diagnosis and treatment.

Vasculitis Foundation
The purpose of the VF Research Grant Program is to provide one or two year seed grants to support pilot studies in researching the etiology, epidemiology, diagnosis, treatment, including approaches that would prevent complications, and development of coping skills for living with this disease.

The Aplastic Anemia & MDS International Foundation
The Aplastic Anemia MDS International Foundation offers two-year research grants of $30,000 per year to advance the understanding and treatment of bone marrow failure diseases, including aplastic anemia, myelodysplastic syndromes (MDS), and paroxysmal nocturnal hemoglobinuria (PNH).The research grant program application and guidelines are available at the MDSIF website.