Microcephalic osteodysplastic primordial dwarfism, type 3
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- More Information (Found: 2 Resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates
- General
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The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Microcephalic osteodysplastic primordial dwarfism, type 3. Click on the link to go to OMIM and review these resources.
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PubMed lists journal articles that discuss Microcephalic osteodysplastic primordial dwarfism, type 3. Click on the link to go to PubMed and review citations to these articles.
- Support Groups (Found: 7 Resources)
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Wendt Center for Loss and Healing
4201 Connecticut Ave NW, Suite 300
Washington, DC 20008
Telephone: 202-624-0010
Fax: 202-624-0062
E-mail: info@wendtcenter.org
Web site: http://www.wendtcenter.org/
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European Skeletal Dysplasia Network
North West Genetics Knowledge Park (Nowgen)
The Nowgen Centre 29 Grafton Street
Manchester M13 9WU
United Kingdom
Phone: 0161 276 3202
Fax: 0161 276 4058
Email: info@esdn.org
Web site: www.esdn.org
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Little People of America (LPA)
5289 NE Elam Young Parkway Suite F-100
Hillsboro OR 97124
Telephone: 888-LPA-2001 (888-572-2001); 503-846-1562
Fax: 503-846-1590
E-mail: info@lpaonline.org
Web site: www.lpaonline.org
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The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
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RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
- Research & Clinical Trials (Found: 3 Resources)
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The U.S. National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. There is a study titled Studies of Children with Metabolic or Other Genetic Disorders which may be of interest to you. To find this trial, click on the link above.
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The NLM Gateway allows users to search across multiple resources offered on the National Library of Medicine's Web site. Some of these resources may be duplicated in the list of links above. Click on the link to go to the NLM Gateway, and search by condition name.