Ehlers-Danlos syndrome, cardiac valvular form
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- More Information (Found: 2 Resources)
Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates
- General
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The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Ehlers-Danlos syndrome, cardiac valvular form. Click on the link to go to OMIM and review these resources.
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PubMed lists journal articles that discuss Ehlers-Danlos syndrome, cardiac valvular form. Click on the link to go to PubMed and review citations to these articles.
- Support Groups (Found: 10 Resources)
Groups providing a wide range of services, supportive resources, and information
- Umbrella Organizations
- Disease-Specific Organizations
- Live Chat
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The National Organization of Rare Disorders (NORD) has partnered with Inspire.com to launch an online community for people with rare diseases called The NORD Rare Disease Community. This community connects medical patients, family members, caregivers, and professionals. Click on The NORD Rare Disease Community to learn more.
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RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders. Click on RareShare to learn more.
- Research & Clinical Trials (Found: 1 Resources)
Resources where you may find research studies and clinical trials
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The U.S. National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. There is a study titled Manifestations of Heritable Disorders of Connective Tissue which may be of interest to you. To find this trial, click on the link above.
- More Search Tools (Found: 1 Resources)
Resources to help you find more information on this topic
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The NLM Gateway allows users to search across multiple resources offered on the National Library of Medicine's Web site. Some of these resources may be duplicated in the list of links above. Click on the link to go to the NLM Gateway, and search by condition name.