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About Surveillance Research:
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Program Advisory Reviews
Cancer Prevention Review Group
The Review
Group on Cancer Prevention Research was appointed in
1996 by the National Cancer Institute (NCI) Director and the Chair
of the NCI Board of Scientific Advisors. The Review Group was
asked to consider how best to utilize the significant, albeit
limited, resources and personnel of NCI in developing and sustaining
a cancer prevention research program.
Cancer Control Review Group
The Cancer
Control Review Group was
established by former NCI Director Richard Klausner to review the Institute's
program in cancer control. In 1998, the committee of experts from across
the country provided two major recommendations related to cancer
surveillance:
- expand the SEER program to include
additional populations, more data from patient's medical records
and patients themselves, and population data from the SEER regions
to monitor individual and societal mediators of cancer; and
- use the SEER expanded data and expertise to produce a timely report
card on the cancer burden for broad audiences. In response,
the Surveillance Implementation Group was created to examine
the Surveillance Research Program in detail.
Surveillance Implementation Group
The Cancer
Surveillance Research Implementation Plan was reported
in March 1999 by the Surveillance Implementation Group, 42 scientists
from the NCI and extramural research communities. The group was
established in response to one of several independent review groups
that examined the Institute's research areas. The Plan expands
the scope of surveillance research, calling for additional data
collection activities and methods development as well as improvement
in population representativeness for estimates of cancer rates.
The plan called for evidence of implementation to be presented on a regular basis
as a 'report card' on the national cancer burden. Also recommended
are increased surveillance support for molecular and genetics
research and development of a training strategy for cancer surveillance
research. The priority areas identified in the Implementation
Plan are being addressed by many of the activities summarized
in this report.
Institute of Medicine Report
A 1999 report titled "The
Unequal Burden of Cancer: An Assessment of NIH Research and Programs
for Ethnic Minorities and the Medically Underserved"
resulted from a review by a panel convened by the Institute of Medicine and chaired
by Dr. Alfred Haynes. The report recommended expansion of surveillance
activities for collecting information on ethnic minority and medically
underserved populations. These groups include lower-income or
poverty-level whites, particularly those living in rural areas
such as Appalachia; African Americans living in rural communities,
particularly in the South; culturally diverse American Indian
populations; and Hispanics of all national origins. The NCI has
responded to the IOM report to clarify the Institute's involvement
in activities related to these populations and to incorporate
relevant recommendations into its planning process.
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