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House Bills - 108th Congress
Session I | Session II
H.R. 2456Diamond-Blackfan Anemia Research and Care Act
On June 12, 2003, Representative Carolyn McCarthy (D-NY) introduced H.R. 2456, to
require increased activities by the National Institutes of Health and the Centers for
Disease Control (CDC) and Prevention regarding Diamond-Blackfan anemia. The bill
would amend the Public Health Service Act by adding a new requirement for the
Director of NIH, in coordination with NHLBI, NIDDK, and the Office of Rare Diseases,
to expand and intensify research and to support a comprehensive research initiative
to study, develop better treatments for, and ultimately find a cure for
Diamond-Blackfan anemia. CDC would be required to maintain and expand the
Diamond-Blackfan Anemia Registry. H.R. 2456 was referred to the House Committee on
Energy and Commerce.
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