House Bills - 108th Congress

H.R. 1910—Genetic Nondiscrimination in Health Insurance and Employment Act

On May 1, 2003, Representative Louise Slaughter (D-NY) introduced H.R. 1910,Genetic Nondiscrimination in Health Insurance and Employment Act. The legislation defines genetic test as the analysis of human DNA, RNA, chromosomes, proteins, or metabolites that detects genotypes, mutations, or chromosomal changes. It also defines protected genetic information as: information about an individual's genetic tests; information about genetic tests of family members of the individual; and information about the occurrence of a disease or disorder in family members. It specifically excludes: information about the sex or age of the individual; information about chemical, blood, or urine analyses of the individual, unless these analyses are genetic tests; or information about physical exams of the individual, and other information that indicates the current health status of the individual. The enforcement provisions would permit courts to award any appropriate legal or equitable relief, including payment of attorney's fees and costs. Monetary penalties in excess of the HIPAA levels are also permitted. H.R. 1910 was referred to the House Energy and Commerce Subcommittee on Health, the House Education and the Workforce Subcommittee on Employer-Employee Relations, and the House Ways and Means Committee.

Legislative Update (December 2003):Genetic Discrimination