More Information About the Research Team that is Responsible
for the IBMFS Project
This study has been designed by, and is being run
by, a team of investigators from the Clinical Genetics Branch
(CGB) of the National Cancer Institute. The following chart will
help you understand exactly where our Program fits within the
structure of the National Institutes of Health.
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The National Institutes of Health (NIH) is one of
the major federal (US Government) agencies. It is the country’s
main biomedical research institutions. It provides financial support
for research activities all over the world. In addition, it has
its own research facility, which is located in Bethesda, Maryland
(just north of Washington DC) on a large campus that resembles
a college or university. There are more than 20 disease specific
organizations, each called an "institute," that make
up the NIH. The largest of them is the National Cancer Institute
(NCI).
The NIH is also home to the world’s largest research
hospital, known as the NIH Clinical Center (CC). Patients who
visit NIH in order to participate in clinical research projects,
such as the IBMFS study, are seen and cared for at the Clinical
Center.
NCI is divided up into smaller units, each of which
is called a "division." Each division is responsible
for a different area of cancer
research. The Human Genetics Program is part of the Division of
Cancer Epidemiology and Genetics [DCEG] , and the Clinical Genetics
Branch is the newest program within DCEG.
CGB has as its mission performing the research needed
to allow us to take advantage of the wealth of new information
related to the genetics of human malignant disease that has come
out of the last decade of molecular biology research, by using
that information to provide better clinical care to persons who
are at increased genetic risk of genetic disease.
CGB has a major emphasis on research that relates
to persons who come from families in which there is a genetic
basis for increased cancer risk. The Inherited Bone Marrow Failure
Syndromes project is one of a number of research studies that
CGB has developed. You may learn more about the activities of
CGB, DCEG and the NCI by visiting their respective Websites:
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