Useful Links

Additional information about some of the inherited bone marrow failure syndromes may be found at various web sites, only a few of which are listed below. Listing of these sites does not constitute an endorsement of their services, nor are we responsible for the accuracy of the information found on these sites.

Disease-specific websites:

• Fanconi Anemia: http://www.fanconi.org/
• Fanconi Canada: http://www.fanconicanada.org/
• Diamond-Blackfan Anemia: http://www.dbafoundation.org/
• Shwachman-Diamond Syndrome: http://www.shwachman-diamond.org/
• Severe Congenital Neutropenia: http://depts.washington.edu/registry/
• Diamond-Blackfan Anemia Registry: http://www.dbar.org/
• Dyskeratosis Congenita Outreach Network: http://www.dcoutreach.com/

General Sites for information about bone marrow failure, aplastic anemia, cancer, or genetics:

• American Cancer Society: http://www.cancer.org/
• Aplastic Anemia & MDS International Foundation, Inc: http://www.aplastic.org/
• Daniella Maria Arturi Foundation: http://www.dmaf.org/
• Hematology 101: http://dceg.cancer.gov/files/FA-HEME101-2003.pdf
• IBMFS Protocol: http://clinicalstudies.info.nih.gov/detail/A_2002-C-0052.html
• National Cancer Institute: http://www.cancer.gov/
• National Cancer Institute, Cancer Net: http://www.cancernet.nci.nih.gov/
• National Cancer Institute, Clinical Genetics Branch: http://dceg.cancer.gov/cgb/
• National Cancer Institute, Division of Cancer Epidemiology and Genetics: http://dceg.cancer.gov/
• National Cancer Institute, Science Behind the News: http://newscenter.cancer.gov/sciencebehind/
• National Human Genome Research Institute, Glossary of Genetic Terms: http://www.genome.gov/glossary.cfm
• National Organization for Rare Disorders, Inc: http://www.rarediseases.org/
• Online Mendelian Inheritance in Man: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=OMIM