Research Resources
Provides information about research resources and opportunities throughout the National Institutes of Health, at other federal agencies, and outside the Federal government with a focus on rare diseases.
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At the National Institutes of Health
NICHD Resources for Researchers
Links to bioengineering, human tissue repositories, disease models, neuroscience research resources, and other resources for research.
Other Federal Agencies
grants.gov
A single government-wide source for information about grants programs across the Federal government.
HCUP Main Page
The Healthcare Cost and Utilization Project (HCUP, pronounced "H-Cup") is a family of health care databases and related software tools and products developed through a Federal-State-Industry partnership and sponsored by the Agency for Healthcare Research and Quality (AHRQ). HCUP databases bring together the data collection efforts of State data organizations, hospital associations, private data organizations, and the Federal government to create a national information resource of patient-level health care data (HCUP Partners). HCUP includes the largest collection of longitudinal hospital care data in the United States, with all-payer, encounter-level information beginning in 1988. These databases enable research on a broad range of health policy issues, including cost and quality of health services, medical practice patterns, access to health care programs, and outcomes of treatments at the national, State, and local market levels.
Non-Federal Resources
Histiocytosis Association of America’s Research Program
The Histiocytosis Association of America’s Research Program seeks to attain its goal of a cure through a variety of efforts, the foremost being the direct funding of both basic and clinical scientific research projects. Through the annual Research Grant Awards, the Association supports basic scientific research into understanding the function of cells and the disease process.
Muscular Dystrophy Association (MDA)
MDA's research program is a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular disease. MDA combats some 40 neuromuscular diseases through a worldwide extramural research program that includes basic, clinical and translational research efforts, as well as a clinical research training grant program. MDA's focus is not simply to fund good science, but to fund good science aimed at developing treatments and therapies for neuromuscular disease.
National Ataxia Foundation (NAF)
The National Ataxia Foundation funds four types of research grants for new and innovative studies that are relevant to the cause, pathogenesis or treatment of the hereditary or sporadic ataxias.
National Organization for Rare Disorders (NORD)
NORD's Research Program provides seed money grants to academic scientists for clinical studies related to the development of diagnostics or treatments of rare diseases. Requests for proposals are posted once a year in the late winter or early spring. NORD's Research Program also includes the NORD/Roscoe Brady Lysosomal Storage Diseases Fellowships.
NephCure Foundation
The NephCure Foundation is the only organization devoted exclusively to supporting research into the cause of and cure for Idiopathic Nephrotic Syndrome and primary Focal Segmental Glomerulosclerosis (FSGS). Comprised of patients, their families and friends, researchers, physicians and other healthcare professionals, NephCure has a growing program of scientific support.
The Progeria Research Foundation (PRF)
Awards of up to $50,000 per year, for up to two years are available from PRF to support investigators for basic science research aimed at developing effective treatments and/or cure for Hutchinson-Gilford Progeria Syndrome and its aging related disorders. Principal investigators must hold post-doctoral positions or beyond. Awards will be granted only to applicants affiliated with institutions with 501(c)3 status, or the equivalent for foreign institutions.
United Mitochondrial Disease Foundation (UMDF)
The UMDF promotes research and education for the diagnosis, treatment, and cure of mitochondrial disorders and provides support to affected individuals and families. Through its Research Program, UMDF awards more than $1 million per year in grants to scientists conducting basic research into mitochondrial disorders as well as for clinical studies focusing on diagnosis and treatment.
Vasculitis Foundation
The purpose of the VF Research Grant Program is to provide one or two year seed grants to support pilot studies in researching the etiology, epidemiology, diagnosis, treatment, including approaches that would prevent complications, and development of coping skills for living with this disease.
The Aplastic Anemia & MDS International Foundation
The Aplastic Anemia MDS International Foundation offers two-year research grants of $30,000 per year to advance the understanding and treatment of bone marrow failure diseases, including aplastic anemia, myelodysplastic syndromes (MDS), and paroxysmal nocturnal hemoglobinuria (PNH).The research grant program application and guidelines are available at the MDSIF website.
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