Brain Tumor Registry Reporting Training Materials
Data Collection of Primary Central Nervous System Tumors
September 2003

Public Law 107-260, the Benign Brain Tumor Cancer Registries Amendment Act, requires programs participating in the National Program for Cancer Registries (NPCR) to collect data on benign and borderline tumors of the central nervous system in addition to the previously required data on malignant tumors. In addition to NPCR, both the National Cancer Institute's (NCI) Surveillance, Epidemiology, and End Results (SEER) program and the American College of Surgeons' (ACS) Commission on Cancer began requiring that these tumors be reported, starting with cases diagnosed on January 1, 2004.

NPCR is pleased to offer the following training materials covering data collection for benign, borderline, and malignant central nervous system tumors. All cancer registry standard-setting organizations have agreed to use these training materials to promote consistency in training. In addition to NPCR, these materials have been approved by the ACS Commission on Cancer, NCI's SEER program, and the North American Association of Central Cancer Registries (NAACCR). The materials were pilot tested during a train-the-trainer program held in Atlanta in September 2003, and feedback from participants in that program was incorporated into these materials. Training instructors from NPCR and SEER cancer registries attended this program. The slide presentation was developed through a contract with NAACCR and reviewed by a NAACCR Registry Operations Committee's Brain Tumor subcommittee, which included representation from all cancer registry standard-setting organizations.

The publication Data Collection of Primary Central Nervous System Tumors (PDF-6MB) is no longer available in a printed version, but you can download this PDF file. For best results, we suggest you print it in color.