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Ethical, Legal and Social Issues (ELSI)

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Australian Gene Ethics NetworkThis reference links to a non-governmental website
A federation of Australian groups and individuals promoting critical discussion and debate on the environmental, social, and ethical impacts of genetic engineering technologies.

Department of Energy
Information about the Department of Energy’s Ethical, Legal, and Social Issues program.

Ethical Aspects of Genetic Testing in the WorkplaceThis reference links to a non-governmental website
By the European Group on Ethics in Science and New Technologies (2003).you will need a free Acrobat reader to view this file

Ethical, Legal, and Social Issues In Public Health Genetics (PHELSI)This reference links to a non-governmental website
From the University of Michigan Center for Public Health and Community Genomics.
you will need a free Acrobat reader to view this file

Eubios Ethics InstituteThis reference links to a non-governmental website
A nonprofit group that aims to stimulate the international discussion of ethical issues.

Genes, Ethics & EnvironmentThis reference links to a non-governmental website
A Public Policy Quarterly of The Ramazzini Institute.

The Genetics and Public Policy CenterThis reference links to a non-governmental website
An independent and objective source of credible information on genetic technologies and genetic policies for the public, media and policymaker.

Genomics Gateway WebsiteThis reference links to a non-governmental website
This website, from the University of Bradford, UK, is designed to guide the user through the area of international treaties, conventions, standards and guidelines applicable to biotechnology in the following three areas:

Harvard School of Public Health, Program on Ethical Issues in International
Health
This reference links to a non-governmental website
Provides information about medical clinical research ethics with an emphasis on the ethics of research in developing countries.

HumGenThis reference links to a non-governmental website
This website access genetics policy documents for the scientific
community, industry, and for the public at-large. From the Centre de recherche en droit public (CRDP) of the Université de Montréal, Canada.

Informed Consent for Population Research Involving Genetics: A Public Health Perspective - EditorialThis reference links to a non-governmental website
Summary: As in other areas of public health, it is crucial that population research involving genetics be done in an ethical framework with informed consent of study participants.

Institute of Ethics of the American Medical AssociationThis reference links to a non-governmental website
Functions as an independent academy at the AMA, performing research in a range of areas in biomedical ethics.

Kansas University Medical CenterThis reference links to a non-governmental website
Links to a variety of websites containing information on ethical, legal, and social issues surrounding genetics.

Lawrence Berkeley National Laboratory's ELSI ProjectThis reference links to a non-governmental website
A pilot project designed to stimulate discussions on the implications of selected areas of scientific research.

National Bioethics Advisory Commission HomepageThis reference links to a non-governmental website
Provides advice and makes recommendations to government entities regarding the appropriateness of departmental, agency, or other governmental programs, policies, assignments, missions, guidelines, and regulations as they relate to human research bioethical issues.

The National Conference of State LegislatorsThis reference links to a non-governmental website
(NCSL) is a source of comprehensive information and research on critical state issues including genetics.

National Information Resource on Ethics & Human GeneticsThis reference links to a non-governmental website
Supports information services searchable via the Internet, the full text of online annotated bibliographies, and print publications - on topics related to ethics and human genetics.

The NHGRI Policy and Legislation Database
The free, searchable database currently focuses on the following subject areas: genetic testing and counseling; insurance and employment discrimination, newborn screening; privacy of genetic information and confidentiality; informed consent; and commercialization and patenting.

National Human Genome Research Institute
The Ethical, Legal and Social Implications (ELSI) Program was established as an integral part of the Human Genome Project, and designed to provide a new approach to scientific research by identifying, analyzing and addressing the ethical, legal and social implications of human genetics research at the same time that the basic scientific issues are being studied.

Stanford University Center for Biomedical Ethics Program in Genomics, Ethics and SocietyThis reference links to a non-governmental website
Provides a model for collaboration between industry and university-based researchers and scholars concerned with the social, ethical, legal, and political implications of advances in human genetics.

University of British Columbia Genetics and EthicsThis reference links to a non-governmental website
Links to websites related to all aspects of genetics and ethics.

University of Pennsylvania Center for BioethicsThis reference links to a non-governmental website
General information about bioethics and links to genetics resources.

This reference links to a non-governmental website
 Provides link to non-governmental sites and does not necessarily  represent the views of the Centers for Disease Control and Prevention.
Page last updated: December 11, 2007
Content Source: National Office of Public Health Genomics