Downloadable Patient Resources

Resources developed by the CDC and its partners:

• Phlebotomy information for patients with hemochromatosis (PDF–61K)
• Diet information for patients with hemochromatosis (PDF–59K)
• Talking with your family members about hemochromatosis (PDF–57K)
• Letter for patients to give to their immediate family members explaining family-based detection(PDF–53K)

Additional Hemochromatosis Information

• Hemochromatosis
  Medline Plus U.S. National Library of Medicine, National Institutes of Health
• Summaries for Patients: Low serum ferritin level rules out advanced liver disease in hemochromatosis
• Dietary Supplement Fact Sheet: Iron – Facts about dietary supplements

Genetic Information

• Genetics FAQ
  National Human Genome Research Institute
  National Institutes of Health
• Talking Glossary of Genetics Terms
  National Human Genome Research Institute
  National Institutes of Health
• Frequently Asked Questions about Genetic Counselors and the NSGC*
  National Society of Genetic Counselors, Inc.
  Assistance for consumers in locating genetic counseling services and information for students curious about the profession. Genetic counselors can be searched by State, City, Counselor's Name, Institution or Areas of Practice or Specialization.

Patient Group Information

Iron Disorders Institute* (IDI)
A national voluntary health agency that provides patient services, books, and literature about hemochromatosis and other disorders of iron such as non-HFE related iron overload, iron loading anemia, anemia of chronic disease, and iron deficiency anemia.

Phlebotomy Information

• For a list of facilities granted approval to accept blood from patients with hemochromatosis, visit Variances for Collection of Blood and Blood Products from Patients with Hemochromatosis.
• The American Association of Blood Banks Blood Bank Locator: Where to Donate and Receive Blood*

Family Health History

• The CDC has created a site for learning about using a family health history.
• Download a basic family health history form (PDF–57K)
• Download a free Family Health Portrait tool.

Health Care Professional Online Training Site

In addition to this Web site, the CDC and its partners have developed a training site for health care professionals, Hemochromatosis: What Every Clinician and Health Care Professional Needs to Know, an online training course for primary care providers describing the pathophysiology, epidemiology, diagnosis, treatment, and management of patients with adult onset hemochromatosis.

The course also provides FREE Continuing Education Credits for physicians, nurses, and other professionals; please visit the site for more detail.

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*Links to non-Federal organizations are provided solely as a service to our users. Links do not constitute an endorsement of any organization by CDC or the Federal Government, and none should be inferred. The CDC is not responsible for the content of the individual organization Web pages found at this link.