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Restricted Access Data Sets
This data set has been designated as a "restricted
access" data set because concerns about confidentiality of study
subjects. The Developmental Disabilities Branch (DDB) will only make
this data set available under restricted conditions.
To request access to the data, interested
researchers must complete a scientific proposal and send it to CDC. The
proposal should clearly state which data sets are being requested, how
the researcher plans to analyze them, and which hypothesis(es) are being
tested. The proposal should be no longer than eight typed, single-spaced
pages, including appendices and cover page, in Times New Roman 12 pt
font. The proposal should include the following:
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Background - This section should describe
the background and reasons for requesting the data set(s) of
interest.
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Introduction - This section should
describe the proposed research, in detail, including a clear
statement of the hypothesis(es) being tested and an explanation of
its significance to the overall analysis. In addition, this section
should also describe how the researchers intend to maintain
confidentiality of the data.
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Methods - This section should clearly
list, with relevant citations, the analytical methods proposed for
data analysis.
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Data Sets Requested - This section should
clearly list the data set(s) requested and the length of time each
data set is needed.
Appendices
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This appendix should state the qualifications
and experience of the Principal Investigator(s).
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This appendix should contain certification that
funding is in place to conduct the research as proposed. This
documentation could consist of a signed letter from the PI's
institution stating this fact.
Once CDC has received the subject proposal, it will
be evaluated by two to three researchers (the majority of them from
outside CDC) to determine its scientific merit. CDC will notify the
researchers by mail about the findings of the review, the disposition of
their request, and further instructions within 6 weeks of receipt of the
proposal.
The original and five copies of the proposal should be sent to:
Dr. Andrew R. Autry
CDC/NCBDDD
1600 Clifton Road
Mailstop E-86
Atlanta, GA 30333
CDC will notify you of receipt by mail. Please do not assume that CDC
has received your proposal unless you receive a confirmation letter.
Return to
previous page
Date:
January 04, 2008
Content source: National Center on Birth Defects and Developmental
Disabilities
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