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Disability and Health
Disability and Health

Women swimmingNational and International Resources

The Disability and Health Team currently administers grants to organizations that provide resources for a healthy lifestyle to all people with disabilities. The specialty centers cover spina bifida, limb loss, paralysis, and intellectual disabilities.
 

 

Spina Bifida Association
The Disability and Health Team at the CDC, National Center on Birth Defects supports the National Resource Center on Spina Bifida housed within the Spina Bifida Association of America. Since 1973, the Spina Bifida Association of America, which is located in Washington, D.C., has been the nation’s voluntary health agency dedicated to enhancing the lives of over 70,000 children and adults who live with spina bifida. Every year, the National Resource Center responds to as many as 10,000 questions about health care, education, employment, and benefits. The Center draws from a variety of publications and resources, including a network of 175 spina bifida clinics and more than 57 local chapters.  

 

Ask the National Resource CenterAs part of developing the information and resource center, the Spina Bifida Association of America recently developed a Health Guide for Adults Living with Spina Bifida. This guide provides health information and resources for adults living with spina bifida to help them manage their own health. The guide is intended to promote independence and self care skills. It may also be used as a resource for talking with another adult about spina bifida.

 

NCPAD Logo

The University of Illinois at Chicago, Department of Disability and Human Development, and Rehabilitation Institute of Chicago, and the National Center on Accessibility at University of Indiana jointly run the National Center on Physical Activity and Disability (NCPAD). Established through a CDC award in 1999, this Center serves as a national clearinghouse to gather, organize and consolidate existing information and to synthesize resources on physical activity for people with disabilities, and facilitate dissemination to consumers, practitioners, and disability and service organizations.

  • The Center's Website http://www.ncpad.org  provides a searchable, on-line database of information regarding all aspects of physical activity as well fact sheets and bibliographies on topics related to specific disabilities and physical activity. Visitors can also conduct searches on organizations, agencies, books, videos, and ways to obtain information from multiple sources on a wide range of general or specific topics.

  • A voice and TTY toll free line. Callers receive referral and individualized information from specialists who can research specific requests and provide materials in many topic areas. 

  • The Center can provide very specialized information on topics such as programs for women, elderly, and condition-specific disabilities as to exercise activities, measures for determining accessible fitness and exercise facilities, referral of complex questions to an expert panel, and a centralized source of information and literature on physical, sensory, and mental disabilities.

  • NCPAD offers a free monthly electronic newsletter. To sign up for this, send an e-mail to Listserv@listserv.uic.edu with this message in the body of the e-mail: SUBSCRIBE NCPAD-NEWS yourfirstname yourlastname

  • The assistive technology unit provides technical assistance in modifications of commercial recreational and exercise equipment and finding solutions that can match a person's interests and abilities with the exercise task they are trying to perform.
     

National Limb Loss Information Center

The Amputee Coalition of America, a CDC-grantee that is based in Knoxville, Tennessee runs the National Limb Loss Information Center. The Amputee Coalition of America has established a large database of literature and referral sources to respond to the needs for information and referral, publications, prosthetic resources, and peer support. In addition they conduct an annual meeting each summer to bring together the Coalition's national constituency to review and advance its information sharing mission, and clinical and outreach products. The National Loss Information Center is the first to provide limb loss information on a national basis to consumers, families and providers. Information venues include a magazine for consumers and providers, peer support groups, and a Web site at http://www.amputee-coalition.org/nllic_about.html
 

Christopher & Dana Reeve Foundation Paralysis Resource Center
The Christopher and Dana Reeve Paralysis Resource Center,
located in Short Hills, New Jersey, officially opened in April 2002.  This new Center is
designed to help improve the quality of life for people with paralysis.  This coordinating facility houses a staff of information specialists, a library, and a website to provide educational materials, referral services, and self-help guidance to those living with paralysis, their families, and caregivers. In addition to providing information services related to paralysis, the Center also awards community-based health promotion grants twice a year. For more information, contact the Christopher and Dana Reeve Paralysis Resource Center at (800) 539-7309 or www.paralysis.org
 

Special Olympics Healthy Athletes logo

Promoting Health Athletes Through Health Screenings at Special Olympics , Healthy Athletes.  http://www.specialolympics.org  Under special Congressional funding, the CDC Disability and Health Team provides support for the Healthy Athletes Program hosted by Special Olympics  to promote the health of athletes with with mental retardation and other disabilities. Funding for the Healthy Athletes Program helps expand on-site health screening and clinical services, and various other supports to over 360,000 athletes with disabilities who participate in the 26 sporting events. In addition to funding, CDC Disability and Health staff has attended several meetings and collaborated in the analysis of health-screening data obtained during the Special Olympics Games. Healthy Athletes screening data are available.

 

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Date: October 24, 2008
Content source: National Center on Birth Defects and Developmental Disabilities /> Content source: National Center on Birth Defects and Developmental Disabilities

 

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