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Online Bioethics Resources
National Human Genome Research Institute (NHGRI)
National Institutes of Health (NIH)
U.S. Department of Health and Human Services (DHHS)
U.S. Department of Energy (DOE)
Other Resources
- American Academy of Pediatrics: Ethical Issues With Genetic Testing in Pediatrics
pediatrics.aappublications.org/cgi/content/full/107/6/1451
Recommendations on newborn screening and genetic testing in children
- bioethics.net
www.bioethics.net/genetics/genetics.php
Links to articles on bioethics and genetics
- Bioethics Resources on the Web
www.nih.gov/sigs/bioethics/
Links to bioethics resources
- Bioetchics International Calendar
www2.umdnj.edu/ethicweb/upcome.htm
Hosted by Robert Wood Johnson Medical School
- CDC Genomics and Disease Prevention
http://www.cdc.gov/genomics/population/rep_policy.htm
Publications: Ethical, legal, and social implications
- Centers for Disease Control: Genomics and Disease Prevention Information System
www2a.cdc.gov/genomics/GDPQueryTool/frmQueryBasicPage.asp
Provides access to information and resources for guiding public health research, policy, and practice on using genetic information to improve health and prevent disease; includes core competencies for public health genetics
- The Council for Responsible Genetics
www.gene-watch.org/
Information on the social, ethical and environmental implications of genetic technologies
- DNA Patent Database
dnapatents.georgetown.edu/
Searchable database of U.S. DNA-based patents issued by the USPTO
- Ethical, Legal & Social Issues
www.ornl.gov/hgmis/elsi/elsi.html and
www.genome.gov/10001618
Information, articles and links on a wide range of issues
- Ethics in Medicine
depts.washington.edu/bioethx/
An electronic resource at the University of Washington School of Medicine
- Genetics & Ethics
www.genethics.ca/index.html
Information on the social, ethical and policy issues associated with genetic and genomic knowledge and technology
- Genetics and Public Policy Center
www.dnapolicy.org
Information on genetic technologies and genetic policies for the public, media and policymakers
- Genome Technology and Reproduction: Values and Public Policy and The Communities of Color & Genetics Policy Project
www.sph.umich.edu/genpolicy/
Two subprojects combined to form a five year project designed to provide policy recommendations based on public perceptions and responses to the explosion of genetic information and technology.
- Georgetown University: National Information Resource on Ethics & Human Genetics
www.georgetown.edu/research/nrcbl/nirehg/index.htm
Search engine for literature on specific issues
- HumGen
www.humgen.umontreal.ca/en/
Access to a comprehensive international database on the legal, social and ethical aspects of human genetics
- National Bioethics Advisory Commission (NBAC)
bioethics.georgetown.edu/nbac/
The Charter of the National Bioethics Advisory Commission expired on October 3, 2001, but this is their archived Web site
- National Information Resource on Ethics & Human Genetics, Kennedy Institute of Ethics
www.georgetown.edu/research/nrcbl/nirehg/index.htm
The NIREHG, funded by the NHGRI and National Institutes of Health, supports information services - for example, bibliographic databases searchable via the Internet, the full text of online annotated bibliographies, and print publications - on topics related to ethics and human genetics
- National Reference Center for Bioethics Literature
www.georgetown.edu/research/nrcbl/nrc/
At Georgetown University
- National Workrights Institute
www.workrights.org
A non-profit organization that works to protect the rights of employees in the workplace, including genetic testing of employees.
- NCSL - Genetic Technologies Project
www.ncsl.org/programs/health/genetics.htm
Status of legislative actions and acess to policy briefs on genetic issues of concern to state legislators
- Online Search of Genetics & Ethics Database
www.georgetown.edu/research/nrcbl/databases/index.htm
Part of the NIREHG, this site lists databases on the Web
- The President's Council on Bioethics
www.bioethics.gov/
Information on current bioethical issues
- Scope Note Series (Kennedy Institute of Ethics/ Georgetown University)
www.georgetown.edu/research/nrcbl/nirehg/scope.htm
Information on various aspects of genetics and ethics
- Teaching Research Ethics
poynter.indiana.edu/tre/
A workshop at Indiana University
- THOMAS Legislative Information on the Internet
thomas.loc.gov/
Searchable database of U.S. legislation
- Your Genes Your Choices
ehrweb.aaas.org/ehr/books/index.html
Describes the Human Genome Project, the science behind it, and the ethical, legal, and social issues that are raised by the project
Last Updated: August 18, 2008
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