HRSA has awarded first-year grants totaling more
than $540,000 to six community-based organizations to establish a network
of statewide centers run by families of children with special health
care needs (CSHCN) to help other families with special needs children.
The organizations will receive annual grants from HRSA’s Maternal and
Child Health Bureau over the next four years, bringing grant totals
to more than $2 million.
These centers, called Family-To-Family Health Care
Information and Education Centers for Families of Children with Special
Health Care Needs, will be designed and supervised by families in partnership
with State Title V CSHCN programs and other providers. They will
offer:
- health and related information to families and providers
for improving health decision-making;
- assistance on gaining greater access to and making better
use of services within communities; and
- educational and leadership opportunities to family members.
Children with special health care needs have, or
are at risk for, chronic physical, developmental, behavioral or emotional
conditions that require health or related services beyond those needed
by most children. An estimated 18 percent of U.S. children have
special health needs.
Technical assistance and training will be provided
by Family Voices, a national grassroots family organization funded by
cooperative agreement with HRSA. For more information
on the Division of Services for Children with Special Health Needs,
visit www.mchb.hrsa.gov and
click on “About MCHB.”
A
list of grantees follows:
Family-to-Family Health Care Information
and Education Centers for Families of Children with Special Health
Care Needs, FY 2002
|
Grantee
|
City
|
State
|
Amount
|
Support
for Families of Children with Disabilities
|
San Francisco
|
Calif.
|
$89,262
|
Florida
Institute for Family Involvement
|
Crawfordville
|
Fla.
|
$89,000
|
Maine
Parent Federation
|
Augusta
|
Maine
|
$89,281
|
PACER Center, Inc.
|
Minneapolis
|
Minn.
|
$89,275
|
Family
Voices of Tennessee of the Tennessee Disability Coalition
|
Nashville
|
Tenn.
|
$97,895
|
Parent to Parent of Vermont
|
Williston
|
Vt.
|
$90,000
|
Total:
|
$544,713
|
#
# #
|