The National Women's Health Information Center - womenshealth.gov
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NWHIC Organizations Directory -- Record DetailsSotos Syndrome Support AssociationMission statement:•A social support environment for professionals and families of individuals affected by Sotos Syndrome so they can meet, exchange ideas and help one another cope with the condition. An understanding of the condition through education. •A quarterly newsletter for members to network ideas, articles, and inspirations. An annual meeting in which to meet, organize, and discuss association business. An annual conference for professionals and families to hear experts in genetics, neurology, psychology, and education. An opportunity for professionals working with individuals affected by Sotos Syndrome to collect data for research and to meet colleagues. Contact Information:Sotos Syndrome Support Association Internet address: http://www.well.com/user/sssa/ Phone number(s):
(630) 682-8815 Related topics:These topics may help you find additional organizations. Click any of these links to do an automatic search. NWHIC record number O-2623 |
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