Frequent Questions

Office of the Assistant Secretary
for Planning and Evaluation

Directory of Health and Human Services Data Resources

INTRODUCTION to Directory of Data Resources

OFFICE OF THE SECRETARY

Office for Civil Rights

• Community Service Assurance Reporting System (CSARS)

Office of the Assistant Secretary for Planning and Evaluation

• National Study of Assisted Living for the Frail Elderly
• National Survey of Homeless Assistance Providers and Clients
• Congressionally Mandated Evaluation of the State Children's Health Insurance Program (SCHIP)

ADMINISTRATION FOR CHILDREN AND FAMILIES

• Emergency Temporary Assistance for Needy Families Data Report System (ETDR)
• Federal Child Care Information System (FCCIS)
• Head Start Program Information Report (HSPIR)
• The Adoption and Foster Care Analysis and Reporting System (AFCARS)
• The National Child Abuse and Neglect Data Systems (NCANDS)
• Runaway and Homeless Youth Management Information System (RHYMIS)
• University Affiliated Programs National Information and Reporting System (NIRS)
• Annual Survey of Refugees
• The Department of Energy's 2001 Residential Energy Consumption Survey (2001 RECS)
• Head Start Family and Child Experiences Survey (FACES)
• The Bureau of the Census' March Current Population Survey (March CPS)
• Refugee Arrivals Data System

ADMINISTRATION ON AGING

• National Aging Programs Information System (NAPIS) - State Performance Reports (SPR)

CENTERS FOR MEDICARE & MEDICAID SERVICES

• Enrollment DataBase (EDB)
• Health Insurance Skeleton Eligibility Write-Off (HISKEW) File
• National Claims History (NCH) 100% Nearline File
• National Claims History (NCH) Standard Analytical Files (SAF)
• End Stage Renal Disease (ESRD) Program Management and Medical Information System (PMMIS)
• State MSIS Reports
• Medicaid Statistical Information System Personal Summary File (MSIS Personal Summary File)
• Medicare Current Beneficiary Survey (MCBS)
• Medicare Provider Analysis and Review (MEDPAR) File
• Consumer Assessment of Health Plans Study - Medicare Satisfaction Survey (CAHPS)
• Continuous Medicare History Sample File (CMHS)
• Hospice Standard Analytical File (Hospice SAF)
• State Medicaid Research Files and Medicaid Analytic eXtract (Medicaid Analytic eXtract is the new name beginning with CY 1999 data) (SMRF/MAX)
• Minimum Data Set (MDS)
• Surveillance, Epidemiology, and End Results - Medicare Linked Database (SEER-Medicare)
• The Outcome and Assessment Information Set (OASIS)

AGENCY FOR HEALTHCARE RESEARCH AND QUALITY

• Consumer Assessment of Health Plans Survey (CAHPS)
• Healthcare Cost and Utilization Project (HCUP)
• HIV Cost and Services Utilization Study (HCSUS)
• Medical Expenditure Panel Survey -Household and Medical Provider Components (MEPS, MEPS-HC and MEPS-MPC)
• Medical Expenditure Panel Survey (MEPS NHC)
• Medical Expenditure Panel Survey - Insurance Component (MEPS IC)
• HIV Research Network (HIVRN)

CENTERS FOR DISEASE CONTROL AND PREVENTION

Agency for Toxic Substances and Disease Registry

• Hazardous Substances Emergency Events Surveillance OMB No. 0923-0008 (HSEES)
• The HazDat System (HazDat)
• National Exposure Registry (NER)

Center for Human Immunodeficiency Virus (HIV)/Acquired Immune Deficiency Syndrome (AIDS), Sexually Transmitted Disease (STD), and Tuberculosis Prevention

• Adult Spectrum of Disease (ASD)
• Congenital Syphilis (CS) Cases Investigation and Report (Form CDC-73.126)(126)
• Gonococcal Isolate Surveillance Project (GISP); Demographic/Clinical Data and Antimicrobial Susceptibility Testing (Form CDC-73.60A,B)(GISP)
• HIV/AIDS Reporting System (HARS)
• HIV Epidemiology Research (HER) Study
• HIV Seroprevalence Among Intravenous Drug Users Entering Drug Treatment Programs, United States
• HIV Seroprevalence in Sexually Transmitted Disease Clinics
• HIV Seroprevalence Survey of Childbearing Women (SCBW)
• HIV Serosurvey in Selected Tuberculosis Clinics
• Jail STD Prevalence Monitoring Project
• Pediatric Spectrum of HIV Disease (PSD)
• Regional Infertility Prevention Program - Chlamydia
• Report of Civilian Cases of Primary and Secondary Syphilis and Gonorrhea by Reporting Source, Sex, Race/Ethnicity and Age Group (Form CDC-9.2638)(2638)
• Sexually Transmitted Diseases Management Information System (STD*MIS)
• Sexually Transmitted Disease Surveillance System (Form CDC-73.998)
• Sexually Transmitted Disease Surveillance System (Form CDC-73.688)
• Supplement to HIV/AIDS Surveillance (SHAS)
• Surveillance for Tuberculosis Infection in Health Care Workers (StaffTRAK-TB)
• Tuberculosis Information Management System (TIMS)
• Young Men's Survey (YMS)

Epidemiology Program Office

• 122 Cities Mortality Reporting System (122 MRS)
• Haemophilus Influenzae Surveillance System
• Morbidity and Mortality Weekly Report
• Morbidity and Mortality Weekly Report Annual Summary

National Center of Chronic Disease Prevention and Health Promotion

• Behavioral Risk Factor Surveillance System (BRFSS)
• Minimum Data Elements (National Breast/Cervical Cancer Early Detection)
• National Program of Cancer Registries (NCPR)
• Pediatric Nutrition Surveillance System (PedNSS)
• Pregnancy Nutrition Surveillance System (PNSS)
• Pregnancy Risk Assessment Monitoring System (PRAMS)
• Youth Risk Behavior Surveillance System (YRBSS)

National Center for Environmental Health

• Childhood Blood Lead Surveillance
• Metropolitan Atlanta Congenital Defects Program (MACDP)

National Center for Health Statistics

• Hispanic Health and Nutrition Examination Survey, 1982-84 (HHANES)
• National Health Interview Survey (NHIS)
• National Health Examination Surveys: I (1960-62) (NHES I); II (1963-65) (NHES II); III (1966-70) (NHES III)
• The First National Health and Nutrition Examination Survey 1971-74 (NHANES I) and the National Health and Nutrition Augmentation Survey of Adults 25-74 Years of Age, 1974-75 (NHANES I Augmentation)
• The Second National Health and Nutrition Examination Survey, 1976-80 (NHANES II)
• The Third National Health and Nutrition Examination Survey, 1988-94 (NHANES III)
• NHANES I Epidemiologic Follow Up Study (NHEFS)
• National Ambulatory Medical Care Survey (NAMCS)
• National Hospital Ambulatory Medical Care Survey (NHAMCS)
• National Survey of Ambulatory Surgery (NSAS)
• National Health Provider Inventory (previously called National Master Facility Inventory) (NHPI)
• National Home and Hospice Care Survey (NHHCS)
• National Hospital Discharge Survey (NHDS)
• National Nursing Home Survey (NNHS)
• 1988 National Maternal and Infant Health Survey (1988 NMIHS)
• 1991 Longitudinal Follow Up to the National Maternal Infant Health Survey
• National Survey of Family Growth (NSFG)
• National Vital Statistics System - Fetal Death Statistics
• National Vital Statistics System - Linked Birth-Infant Data Set
• National Vital Statistics System - Natality
• National Vital Statistics System - Mortality
• National Mortality Follow Back Survey (1993) (NMFS)
• State And Local Area Integrated Telephone Survey (SLAITS)
• The National Health And Nutrition Examination Survey, 1999+
• National Asthma Survey (NAS)
• National Survey of Children's Health (NSCH)

National Center for Infectious Diseases

• Active Bacterial Core Surveillance
• Acute Surveillance for Cryptosporidium and Cyclospora via FoodNet
• Cholera
• Creutzfeldt-Jakob Disease Surveillance System
• Enterovirus Surveillance System
• Foodborne Diseases Active Surveillance Network
• Hemophilia Surveillance System
• Imported Dengue (ABC's)
• Laboratory Surveillance of Cryptosporidium and Malaria via PHLIS
• Minimal Data Set for Hemophilia
• National Antimicrobial Resistance Monitoring System (NARMS)
• National Bacterial Meningitis Reporting System
• National Campylobacter Surveillance System
• National Malaria Surveillance System
• National Nosocomial Infections Surveillance System (NNIS)
• National Salmonella System (NSSS)
• National Surveillance of Dialysis-Associated Diseases in U.S. (NSD)
• National Surveillance System for Hospital Health Care Workers (NaSH)
• National Surveillance for Domestic Arboviral Encephalitis Cases in Humans
• Parasitic Diseases Drug Service
• Plague
• Public Health Laboratory Information System (PHLIS)
• Sentinel Site Laboratory-Based Surveillance for Cyclospora
• Sentinel Counties Study of Viral Hepatitis
• Statistical Outbreak Detection Algorithm (SODA)
• Streptococcus Pneumoniae and Haemophilus Influenzae
• Surveillance for Giardia
• Surveillance for Pneumocystis Carinii Pneumonia Treatment Failures
• Surveillance for Trichinosis and Cryptosporidium
• Unexplained Deaths and Serious Illnesses Surveillance
• Universal Data Collection and Serum Specimen Collection System
• U.S. Influenza Sentinel Physician Surveillance Network
• Viral Hepatitis Surveillance Program (VHSP)
• Waterborne Diseases Outbreak Surveillance System (WBDOSS)

National Center for Injury Prevention and Control

• Firearm Injury Surveillance Study
• National Electronic Injury Surveillance System (NEISS) All Injury Program (AIP)
• Traumatic Brain Injury Surveillance System
• State-Based Emergency Department Injury Surveillance

National Immunization Program

• Diphtheria Antitoxin
• National Congenital Rubella Syndrome Registry (NCRSR)
• National Immunization Provider Record Check Study (NIPRCS)
• National Immunization Survey (NIS)
• Perinatal Hepatitis B Prevention Data Management System
• Pertussis
• Tetanus
• Vaccine Adverse Event Reporting System (VAERS)
• Vaccine Safety Datalink Project

National Institute for Occupational Safety and Health

• Adult Blood-Lead Epidemiology and Surveillance Program (ABLES)
• Alaska Occupational Injury Surveillance System
• Alaska Trauma Registry, Work-Related Injury Surveillance
• Coal Workers' X-Ray Surveillance Program (CWXSP)
• Fatality Assessment and Control Evaluation (FACE)
• Hearing Conservation and Audiometric Database Analysis System (HC&ADBA)
• National Agricultural Workers Survey (NAWS) Youth Injury and Farm Worker
• National Coal Workers' Autopsy Study (NCWAS)
• National Occupational Mortality Surveillance System (NOMS)
• National Surveillance of Nonfatal Occupational Injury
• National Surveillance System for Pneumoconiosis Mortality (NSSPM)
• National Traumatic Occupational Facilities Surveillance System (NTOF)
• Sentinel Event Notification Systems for Occupational Risks - Silicosis (SENSOR Silicosis)
• Sentinel Event Notification Systems for Occupational Risks - Work-Related Asthma (SENSOR WRA)

FOOD AND DRUG ADMINISTRATION

Center for Drug Evaluation and Research

• 1998 and 2000 National Surveys of Prescription Drug Information Provided to Patients (NSPDIPP)

Center for Food Safety and Applied Nutrition

• Consumer Survey of Cosmetic Usage Patterns (CSCUP)
• Food Label Use and Nutrition Education Survey (FLUNES)
• Health and Diet Survey (HDS)
• Weight Loss Practices Survey (WLPS)

HEALTH RESOURCES AND SERVICES ADMINISTRATION

Bureau of Health Professions

• Area Resource File

Bureau of Primary Health Care

• Uniform Data System

HIV/AIDS Bureau

• AIDS Education and Training Centers
• Dental Reimbursement Program-HIV/AIDS
• Organ Transplantation
• Ryan White Comprehensive Aids Resources Emergency (CARE) Act of 1990, Care Act Data Report (CADR) System

Maternal and Child Health Bureau

• Block Grant Accountability

INDIAN HEALTH SERVICE

Office of Public Health

• American Indian and Alaska Native Linked Birth/Infant Death Record Database (AIAN-LBID)
• American Indian and Alaska Native Mortality Database (AIAN-MORT)
• American Indian and Alaska Native Natality Database (AIAN-NATAL)
• Indian Health Service Ambulatory Patient Care System (IHS-APCS)
• Indian Health Service Dental Services Reporting System (IHS-DSRS)
• Indian Health Service Inpatient Care System (IHS-ICS)
• Indian Health Service Patient Registration System (IHS-PTREG)
• Indian Health Service Population Estimates and Projections (IHS-PEP)

NATIONAL INSTITUTES OF HEALTH

National Cancer Institute

• National Longitudinal Mortality Study-National Death Index Record Linkage (NLMS)
• Public-Use-Data on Cancer Incidence and Survival from the Surveillance, Epidemiology and End Results (SEER) Program of the National Cancer Institute (SEER Public-Use CD-ROM)
• Tobacco Use Supplement to the Current Population Survey (TUS-CPS)

National Heart, Lung, and Blood Institute

• Atherosclerosis Risk in Communities Study (ARIC)
• Cardiovascular Health Study (CHS)
• Coronary Artery Risk Development in Young Adults (CARDIA)
• Honolulu Heart Program (HHP)
• National Longitudinal Mortality Study (NLMS)
• Puerto Rico Heart Health Program (PRHHP)
• The NHLBI Growth and Health Study (NGHS)

National Institute on Aging

• Asset and Health Dynamics Among the Oldest Old Study(AHEAD)
• Established Populations for Epidemiologic Studies of the Elderly (EPESE)
• Health and Retirement Study (HRS)
• Longitudinal Studies on Aging (LSOA)
• National Long-Term Care Survey (NLTCS)
• Women's Health and Aging Study (WHAS)

National Institute of Allergy and Infectious Diseases

• National Cooperative Inner City Asthma Study, Phase I (NCICAS)
• National Cooperative Inner City Asthma Study, Phase II (NCICAS)

National Institute on Alcohol Abuse and Alcoholism

• National Longitudinal Alcohol Epidemilogic Survey (NLAES)
• National Epidemiologic Survey on Alcohol and Related Conditions (NESARC)

National Institute of Mental Health

• Epidemiologic Catchment Area Program (ECA)
• National Comorbidity Survey- Replication, National Survey of African American Mental Health, and National Latino and Asian American Study (NCS-R, NSAA, and NLAAS)
• Treatment of Depression Collaborative Research Program (TDCRP)

National Institute for Child Health and Human Development

• Current Population Survey - Nativity Supplement (CPS)
• Mexican-American Study Project - Follow Up
• National Longitudinal Study of Adolescent Health (AddHEALTH)
• National Survey of Adolescent Males (NSAM)
• New Immigrant Survey - A Pilot Study
• New Immigrant Study (NIS)
• Puerto Rican Maternal and Infant Health Project (PRMIHP)

SUBSTANCE ABUSE AND MENTAL HEALTH SERVICES ADMINISTRATION

Center for Mental Health Services

• CMHS Client/Patient Sample Survey (CPSS)
• Inventory of Mental Health Organizations and General Hospital Mental Health Services (IMHO/GHMHS)
• Survey of MentaSurvey of Mental Health Organizations, General Hospital Mental Health Services, and Managed Care Organizations Survey (SMHO)
• 1988 Inventory of Mental Health Services in State Adult Correctional Facilities

Office of Applied Studies

• Alcohol and Drug Services Survey (ADSS)
• Drug Abuse Warning Network (DAWN)
• Drug and Alcohol Services Information System (DASIS)
• Drug Services Research Survey (DSRS)
• National Household Survey on Drug Abuse (NHSDA)
• Services Research Outcome Study (SROS)

Center for Substance Abuse Treatment

• National Treatment Outcomes Monitoring System (NTOMS)

APPENDIX

• Appendix A: Reporting Form

Comments/suggestions about the Database Directory web pages should be directed to the Database Directory Web Master.

Last Revised: February 25, 2003

HHS Home | Questions? | Contact HHS | Site Feedback | Site Map | Accessibility | Privacy Policy | Freedom of Information Act | Disclaimers The White House | USA.Gov

U.S. Department of Health & Human Services · 200 Independence Avenue, S.W. · Washington, D.C. 20201