Frequently Asked Questions Fibromyalgia
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Fibromyalgia (fi-bro-mi-l-ja) is a disorder that causes aches and pain all over the body. People with FM also are tender throughout the body, which is most pronounced at certain regions termed "tender points." Tender points are specific places on the neck, shoulders, back, hips, arms, and legs. These points hurt when pressure is put on them.
People with FM could have:
- Muscle pain
- Fatigue
- Trouble sleeping
- Joint pain, stiffness (sometimes worse in the morning)
- Headaches
- Restless legs
- Tingling or numbness in hands and feet
- Problems with thinking and memory (sometimes called "fibro fog")
- Leg cramps
- Feeling nervous
- Depression
- Feeling dizzy or lightheaded
- Painful cramping during your period
- Jaw pain
- Upset stomach, cramping, bloating, feeling constipated or diarrhea
- Trouble swallowing
- Frequent or painful urination
FM affects as many as 1 in 50 Americans. Most people with FM are women (about 80-90%). However, men and children also can have the disorder. Most people are diagnosed during middle age. FM can occur by itself, but people with certain other diseases, such as rheumatoid arthritis and other types of arthritis, may be more likely to have FM.
Individuals who have a close relative with FM are more likely to develop FM.
The causes of FM are not known. Researchers think a number of factors might be involved. FM has been linked to:
- Having a family history of fibromyalgia (i.e. genetics)
- Being exposed to stressful or traumatic events, such as
- car accidents
- injuries to the body caused by performing the same action over and over again
- infections or illnesses
- being deployed to war
People with FM often see many doctors before being diagnosed. One reason for this may be that pain and fatigue, the main symptoms of FM, also are symptoms of many other conditions. Therefore, doctors often must rule out other possible causes of these symptoms before making a diagnosis of FM. FM cannot be detected by a lab test either.
A doctor who knows about FM,
however, can make a diagnosis based
upon two criteria:
- A history of widespread pain lasting
more than 3 months. Pain must be
present in both the right and left
sides of the body as well as above
and below the waist.
- Presence of tender points. The body
has 18 sites that are possible tender points. For FM diagnosis a person must have 11 or more tender points. To be deemed a tender point, pain must be felt when pressure is applied to the site. People who have FM may feel pain at other sites, too, but those 18 sites on the body are used for diagnosis.
The previous criteria were developed for use to standardize research studies and are not necessary to diagnose individual patients, but if you feel your
doctor doesn’t know a lot about FM or
has doubts about whether it is a "real"
illness, see another doctor for a second
opinion. Contact a local university
medical school or research center for
help finding a doctor who has helped others with FM.
FM can be hard to treat. It's important to find a doctor who has treated others with FM. Many family doctors, general internists, or rheumatologists can treat FM. Rheumatologists are doctors who treat arthritis and other conditions that affect the joints and soft tissues.
Treatment often requires a team approach. The team may include your doctor, a physical therapist, and possibly other health care providers. A pain or rheumatology clinic can be a good place to get treatment.
The U.S. Food and Drug
Administration has not yet approved any medicines to treat FM. Doctors
treat FM with medicines approved for
other purposes. Pain medicines and
antidepressants are often used in
treatment.
Chronic fatigue syndrome (CFS) and FM are alike in many ways. In fact, it is not uncommon for a person to have both FM and CFS. Some experts believe that FM and CFS are in fact the same disorder, but expressed in slightly different ways. Both CFS and FM have pain and fatigue as symptoms.
The main symptom of CFS is extreme
tiredness. CFS often begins after having
flu-like symptoms. But people with
CFS do not have the tender points that
people with FM have. To be diagnosed
with CFS, a person must have:
- Extreme fatigue for at least 6
months that cannot be explained by
medical tests and
- Have 4 or more of the following
symptoms:
- Forgetting things or having a
hard time focusing
- Feeling tired even after sleeping
- Muscle pain or aches
- Pain or aches in joints without
swelling or redness
- Feeling discomfort or "out-of-
sorts" for more than 24 hours
after being active
- Headaches of a new type,
pattern, or strength
- Tender lymph nodes in the neck or under the arm
- Sore throat
Besides taking medicine prescribed by
your doctor, there are many things you can do to lessen the impact of FM on your life:
- Get enough sleep. Getting enough sleep and the right kind of sleep can help ease the pain and fatigue of FM.
- Get moving. Though pain and fatigue may make exercise and daily activities hard, being active as possible is important. People who have a lot of pain or fatigue should begin with walking or other gentle
exercises and slowly build up to
more demanding workouts.
- Make changes at work. Most
people with FM continue to work,
but they may have to make big
changes to do so. For example, some
people cut down the number of
hours, switch to a less demanding job, or adapt a current job.
- Eat right. Try to add more fruits,
vegetables, and whole grains to your
diet.
If you cannot work because of your
FM, contact the Social Security
Administration for help with disability benefits.
Social Security Administration
Phone Number: (800) 772-1213
Internet Address: http://www.ssa.gov
The National Institute of Arthritis and
Musculoskeletal and Skin Diseases
sponsor research to help understand
FM and find better ways to diagnose, treat, and prevent it. Researchers are
studying:
- Why people with FM have are
highly sensitive to pain
- The role of stress hormones in the
body
- Medicines and behavioral treatments
- Whether there is a gene or genes
that make a person more likely to have FM
For more Information
You can find out more about fibromyalgia by contacting the National Women's Health
Information Center (NWHIC) at 800-994-9662 or the following organizations:
National Institute of Arthritis and Musculoskeletal and Skin Diseases
Phone Number(s): (877) 226-4267 or (301) 495-4484
Internet Address: http://www.niams.nih.gov
Diseases Association
Association
American Autoimmune Related
Phone Number(s): (800) 598-4668
Literature Requests, (586) 776-3900
Internet Address: http://www.aarda.org
National Fibromyalgia Research
Internet Address: http://www.nfra.net
The Fibromyalgia FAQ has been reviewed by Daniel J. Clauw, M.D., Professor of Medicine, Division of Rheumatology; Assistant Dean for Clinical and Translational Research; Director, Chronic Pain and Fatigue Research Center Director, Center for the Advancement of Clinical Research at the University of Michigan
All material contained in the FAQs is free of copyright restrictions, and may be copied, reproduced, or duplicated without permission of the Office on Women's Health in the Department of Health and Human Services; citation of the source is appreciated.
Content last updated May 1, 2006.
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