RDCRN Newsworthy
January 21, 2008: BMFDC Principal Investigator Dr. Jaroslaw Maciejewski featured in recent Newsweek Article: MY TURN: Falling Into a Medical Abyss
November 28, 2007: Feature Article: On the Trail of Rare Disease by Pete Thompson. The New Physician, Nov 07.
February 8, 2007: Rett Syndrome Research Foundation Press Release: REVERSAL OF SYMPTOMS IN AN AUTISM SPECTRUM DISORDER - Rett Syndrome is reversed in genetic mouse model.
Parents' Guide to Medical Research - Provided by the Children's Hospital Boston: Information
about clinical research for parents who are deciding about participation of their children in trials and studies. Includes an interactive video and tutorial as well as questions to ask researchers. Children's Hospital Boston Web Site >>>
July 6, 2006: The News & Observer, Raleigh, NC: Grants spur work on 'orphan' drugs
RDCRN Makes Contact Registry Available for Download - to Facilitate Those Without Internet Access! Check your consortium web site for more details...
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Archives:
May 5, 2006 Press Release: NIH Launches Clinical Studies Nationwide to Investigate Rare Diseases
NIH Establishes Rare Diseases Clinical Research Network
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Events
2008 Vasculitis Symposium
The Vasculitis Foundation is hosting its 8th International Symposium for patients, family members and medical experts to discuss the most current information on vasculitis including advances in diagnosis, treatment and research.
June 6-8, 2008
Mayo Clinic, Rochester, Minnesota
Information:
www.vasculitisfoundation.org/news/2007/12/28/8th-international-vasculitis-symposium
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