RARE DISEASES AND DISORDERS - Organization listings: 1 to 20 of 32

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1. Acid Maltase Deficiency Association (details)
   http://www.amda-pompe.org/
2. American Pseudo-Obstruction & Hirschsprung's Society (details)
   
3. Amyloidosis Foundation (details)
   http://www.amyloidosis.org
4. Centro de Información sobre Enfermedades Genéticas y Raras, NIH (details)
   http://rarediseases.info.nih.gov/Wrapper.aspx?src=asp/html/resources/info_cntr_esp.html
5. Coalition for Pulmonary Fibrosis  (details)
   http://www.coalitionforpf.org/
6. Dysautonomia Foundation, Inc. (details)
   http://www.familialdysautonomia.org/
7. Dysautonomia Treatment and Evaluation Center (details)
   http://www.med.nyu.edu/fd/
8. Genetic Alliance, Inc. (details)
   http://www.geneticalliance.org/
9.   Genetic and Rare Diseases Information Center (details)
   http://www.genome.gov/10000409
10. Genetics Education Center, University of Kansas Medical Center (details)
    http://www.kumc.edu/gec/
11. Guillain-Barré Syndrome Foundation International  (details)
    http://gbs-cidp.org/
12. Hereditary Hemorrhagic Telangiectasia Foundation International, Inc. (details)
    http://www.hht.org/web/
13. Joubert Syndrome Foundation (details)
    http://www.joubertsyndrome.org/
14. Lowe Syndrome Association, Inc. (details)
    http://www.lowesyndrome.org/
15. National Fragile X Foundation (details)
    http://www.nfxf.org/
16. National Organization for Rare Disorders (details)
    http://www.rarediseases.org/
17.   Office of Rare Diseases, OD, NIH, HHS (details)
    http://rarediseases.info.nih.gov
18. Prader-Willi Syndrome Association (USA) (details)
    http://www.pwsausa.org/
19. Progeria Research Foundation  (details)
    http://www.progeriaresearch.org/
20. Rare Diseases Clinical Research Network (details)
    http://rarediseasesnetwork.epi.usf.edu/

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