NWHIC Organizations Directory -- Record Details

National Adrenal Diseases Foundation

Mission statement:

The National Adrenal Diseases Foundation is a non-profit organization dedicated to providing support, information and education to individuals having Addison's disease as well as other diseases of the adrenal glands. Individuals suffering from Addison's disease are often misdiagnosed or go for long painful periods without proper diagnosis. Symptoms of these diseases often mirror those of chronic fatigue syndrome including steadily worsening fatigue, a loss of appetite and some weight loss. Blood pressure is low and falls further when a person is standing, producing lightheadedness. Because of salt loss, a craving for salty foods is common. And, a darkening of the skin that may look like an inappropriate tan on a person who feels ill can be produced. Individuals with Addison's disease or another disease of the adrenal glands can expect to live a normal life as long as the proper medical care is received and the correct dose of replacement medication is taken every day. NADF is committed to bringing information regarding these rare diseases into the public's awareness to facilitate early diagnosis and treatment. NADF sponsors support groups across the country allowing for an exchange of ideas and feelings by individuals who share a common illness. NADF members receive quarterly newsletters, educational materials, and access to a library of related information. NADF does not receive funding from the Federal Government, United Way or other agencies.

Contact Information:

National Adrenal Diseases Foundation
505 Northern Boulevard, Suite 200
Great Neck NY 11021

Internet address: http://www.medhelp.org/www/nadf/

Phone number(s):

(516) 487-4992 Voice

Related topics:

These topics may help you find additional organizations. Click any of these links to do an automatic search.

• ADDISON'S DISEASE
• ADRENAL DISEASE/DISORDER
• CUSHINGS SYNDROME
• ENDOCRINE DISEASES AND DISORDERS

NWHIC record number O-2068