NWHIC Organizations Directory -- Record Details

Dystrophic Epidermolysis Bullosa Research Association of America, Inc.

Mission statement:

DebRA was organized more than 20 years ago to help patients and their families. Its activities include: Promoting and supporting extensive scientific research to achieve a cure for EB; Assisting, supporting and guiding families in the physical and emotional treatment of individuals with EB. DebRA’s programs include the daily services of an experienced Nurse/Educator, a national physician referral service, a network of regional support groups and an information filled website; Representing families and patients to the public and government institutions.

Contact Information:

Dystrophic Epidermolysis Bullosa Research Association of America, Inc.
5 West 36th Street, Suite 404
New York NY 10018

Internet address: http://debra.org/

Phone number(s):

(212) 868-1573
(866) 332-7276

Fax number:

(212) 513-4099

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• EPIDERMOLYSIS BULLOSA

NWHIC record number O-219