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Agency for Healthcare Research Quality www.ahrq.gov
www.ahrq.gov

Where to Find More Information

Get the Support You Need

American Self-Help Group Clearinghouse
http://mentalhelp.net/selfhelp/

National Board for Certified Counselors (NBCC)
3 Terrace Way, Suite D
Greensboro, NC 27403-3660
336-547-0607
http://www.nbcc.org

National Institute of Mental Health
Public Information and Communications Branch
6001 Executive Boulevard, Room 8184, MSC 9663
Bethesda, MD 20892-9663
Phone: 866-615-6464 (toll-free)
TTY: 301-443-8431
http://www.nimh.nih.gov/HealthInformation/GettingHelp.cfm

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Talk With Your Doctor

Be an Active Member of Your Health Care Team
Food and Drug Administration, 2004
http://www.fda.gov/cder/consumerinfo/active_member.htm
Phone: 888-INFO-FDA (888-463-6332)

Having Surgery? What You Need to Know
Agency for Healthcare Research and Quality,, 2005
http://www.ahrq.gov/consumer/surgery/surgery.htm
Phone: 800-358-9295

Five Steps to Safer Health Care
Agency for Healthcare Research and Quality, 2003
http://www.ahrq.gov/consumer/5steps.htm
Phone: 800-358-9295

Getting a Second Opinion Before Surgery
Centers for Medicare & Medicaid Services, 2004
http://www.medicare.gov/Publications/Pubs/pdf/02173.pdf (PDF Help)
Phone: 800-MEDICARE (800-633-4227)

How to Get a Second Opinion
National Women's Health Information
Center, 2003
http://www.4woman.gov/pub/secondopinion.cfm
Phone: 1-800-994-WOMAN

Quick Tips—When Planning for Surgery
Agency for Healthcare Research and Quality, 2002
http://www.ahrq.gov/consumer/quicktips/tipsurgery.htm
Phone: 800-358-9295

Quick Tips—When Talking with Your Doctor
Agency for Healthcare Research and Quality, 2002
http://www.ahrq.gov/consumer/quicktips/doctalk.htm
Phone: 800-358-9295

Talking with Your Doctor: A Guide for Older People
National Institute on Aging, 2002
http://www.niapublications.org/pubs/talking/index.asp
Phone: 800-222-2225

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Seek Out Information

2005 Toll-Free Numbers for Health Information
National Health Information Center
http://www.health.gov/nhic/pubs/tollfree.htm
Phone: 800-336-4797

AARP Health Guide
AARP, 2004
http://www.aarp.org/health/healthguide
Phone: 888-OUR-AARP (888-687-2277)

HON Code of Conduct (HONcode) for Medical and Health Web Sites
Health on the Net Foundation
http://www.hon.ch/HONcode/

How to Evaluate Health Information on the Internet: Questions and Answers
National Cancer Institute, 2003
http://cis.nci.nih.gov/fact/2_10.htm
Phone: 800-4-CANCER (800-422-6237)

How to Find Medical Information
National Institute of Arthritis and Musculoskeletal and Skin Diseases, 2001
http://www.niams.nih.gov/Health_Info/how_to_find.asp
Phone: 877-22-NIAMS (877-226-4267) (tollfree)

National Guideline Clearinghouse™
Agency for Healthcare Research and Quality
http://www.guideline.gov

NOAH: New York Online Access to Health
http://www.noah-health.org/

A User's Guide to Finding and Evaluating Health Information on the Web
Medical Library Association, 2003
http://www.mlanet.org/resources/userguide.html#1

Virtual Treatments Can Be Real-World Deceptions
Federal Trade Commission, 2001
http://www.ftc.gov/bcp/conline/pubs/alerts/mrclalrt.htm

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Specific Diseases and Conditions

Allergies
ALS
Alzheimer's Disease
Arthritis
Asthma
Cancer
Cerebral Palsy
Chronic Fatigue Syndrome
Chronic Obstructive Pulmonary Disease
Craniofacial and Skeletal Diseases
Deafness and Hearing Disorders
Diabetes
Digestive Diseases
Eye Diseases and Disorders
Fibromyalgia
Heart Disease
High Blood Pressure
HIV/AIDS
Immunodeficiency Disorders
Infectious Diseases
Kidney Diseases
Lung Diseases
Mental Health
Multiple Sclerosis
Muscular Dystrophy
Neurologic Disorders
Obesity
Parkinson's Disease
Rare Diseases and Disorders
Skin Diseases
Sleep Disorders
Stroke
Urologic Diseases

Allergies

Publications

Allergies
National Institute of Allergies and Infectious Diseases
http://www3.niaid.nih.gov/PubsOrderForm/default.asp

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ALS

Organizations/Information

ALS Association
27001 Agoura Road, Suite 150
Calabasas Hills, CA 91301-5104
Phone: 800-782-4747
http://www.alsa.org

Publications

Newly Diagnosed
ALS Association, 2004
http://www.alsa.org/patient/diagnosed.cfm? CFID=162302&CFTOKEN=7741544

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Alzheimer's Disease

Organizations/Information

Alzheimer's Association
225 N. Michigan Avenue, Fl. 17
Chicago, IL 60601-7633
Phone: 800-272-3900 (Nationwide Contact Center Helpline)
http://www.alz.org

Alzheimer's Disease Education and Referral Center
P.O. Box 8250
Silver Spring, MD 20907-8250
Phone: 800-438-4380
http://www.alzheimers.org

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Arthritis

Organizations/Information

National Institute of Arthritis and Musculoskeletal and Skin Diseases
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484 or 877-22-NIAMS (877-226-4267) (toll-free)
http://www.niams.nih.gov/hi/index.htm

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Asthma

Organizations/Information

Asthma
National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/health/dci/Diseases/ Asthma/Asthma_WhatIs.html

National Heart, Lung, and Blood Institute
NHLBI Information Center
Attn: Web Site
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
http://www.nhlbi.nih.gov/health/index.htm

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Cancer

Organizations/Information

American Cancer Society
1599 Clifton Road, NE
Atlanta, GA 30329
Phone: 800-ACS-2345 (800-227-2345)
http://www.cancer.org

National Cancer Institute, Public Inquiries Office
6116 Executive Boulevard, Room 3036A
Bethesda, MD 20892-8322
Phone: 1-800-4-CANCER (1-800-422-6237)
TTY: 1-800-332-8615
http://cancer.gov/help

National Organizations that Offer Services to People with Cancer and Their Families
National Cancer Institute
http://cis.nci.nih.gov/fact/8_1.htm

Publications

After the Diagnosis (For women living with cancer)
Gillette Cancer Connection, 2004
http://www.gillettecancerconnect.org/women/after_diagnosis.asp

Coping with Physical and Emotional Changes
American Cancer Society, 2004
http://www.cancer.org/docroot/MBC/MBC_0.asp?sitearea

I've Just Been Diagnosed with Breast Cancer
Y-ME National Breast Cancer Organization, 2004
http://www.yme.org/diagnosed/diagnosed.php

Questions for Your Doctor: Your First Visit
Testicular Cancer Resource Center, 2004
http://tcrc.acor.org/startquest.html

Using Evidence-Based Information
National Breast Cancer Coalition, 2003
http://www.natlbcc.org/nbccf/info/evidence.html

Your Health Care Team: Your Doctor is Only the Beginning
National Cancer Institute, 2000
http://cis.nci.nih.gov/fact/8_10.htm

Support

Association of Cancer Online Resources
http://www.acor.org

Cancer Support Groups: Questions and Answers
National Cancer Institute, 2002
http://cis.nci.nih.gov/fact/8_8.htm

CancerCare
http://www.cancercare.org/Counseling/Counselingmain.cfm

National Coalition for Cancer Survivorship
http://www.canceradvocacy.org

Talking with Family and Friends
Y-ME National Breast Cancer Organization, 2005
http://www.yme.org/diagnosed/how_to_talk_to_family.php

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Cerebral Palsy

Organizations/Information

United Cerebral Palsy
1660 L Street, NW, Suite 700
Washington, DC 20036
Phone: 800-872-5827
http://www.ucpa.org

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Chronic Fatigue Syndrome

Organizations/Information

Chronic Fatigue Syndrome
National Center for Infectious Diseases
Centers for Disease Control and Prevention
http://www.cdc.gov/ncidod/diseases/cfs/

Support

Support Groups
Centers for Disease Prevention and Control
http://www.cdc.gov/ncidod/diseases/cfs/support/

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Chronic Obstructive Pulmonary Disease

Organizations/Information

Diseases and Conditions Index: COPD
National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/health/dci/Diseases/Copd/Copd_WhatIs.html

National Heart, Lung, and Blood Institute
NHLBI Information Center
Attn: Web Site
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
http://www.nhlbi.nih.gov/health/index.htm

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Craniofacial and Skeletal Diseases

Organizations/Information

Health Information
National Institute of Dental and Craniofacial Research
http://csdb.nidcr.nih.gov/frame_info.htm

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