Fiscal Year 2002
Fact Sheet
In building research relevant
to racial and ethnic minority children,
the Agency for Healthcare Research and
Quality (AHRQ) funded grants
focusing on outcomes; quality and
patient safety; and cost, use and
access—AHRQ's three strategic goals.
In addition, AHRQ funded grants for
research on capacity building.
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Outcomes / Quality and Patient Safety / Cost, Use, and Access / Capacity Building / For More Information
Outcomes
Title: Barriers to Care for Chronically Ill
Vulnerable Children
Principal Investigator: Michael Seid, Children's Hospital Research Center,
San Diego, CA.
Grant No.: R03
HS13058 (03/01/02-02/28/03).
Description: This project will help to develop and
test a "Barriers to Care
Questionnaire" in English and
Spanish. The questionnaire will be
used to identify and measure
modifiable barriers to care that affect
the link between vulnerability factors
and health care structures, processes,
and outcomes for Black, Hispanic
and other children with special
health care needs.
Title: Parenting Effects of Healthy Steps:
Health Care Utilization and
Expectations for Pediatric Care
Principal Investigator: Cynthia
Minkovitz, Johns Hopkins
University, Baltimore, MD.
Grant No.: R01 HS13086 (05/05/02-04/30/05).
Description: This project will assess
whether enhanced delivery of
behavioral and developmental
services in the first 3 years of life
changes parental attitudes and
practices when their children reach 5
years of age. Participants will
include Black, Asian-American,
Native American, Hispanic and
other parents and their children.
Title: Medical Management of Children
with Chronic Conditions
Principal Investigator: Frederick
Connell, University of Washington,
Seattle, WA.
Grant No.: R03
HS13230 (10/01/02-09/30/03).
Description: The aims of this study are to (1)
develop an operational definition
that can be used with Medicaid
claims data to identify a child's
medical home, and (2) examine the
relationships between demographic
factors and disease severity associated
with having a medical home. The
four chronic conditions to be
investigated are asthma,
diabetes, cerebral palsy and low-birth
weight. African-American,
American Indian, Asian-American
and Hispanic/Latino
children will be included in this
study.
Title: Maternal Depressive
Symptoms and Children's
Health Care
Principal Investigator: Cynthia
Minkovitz, Johns Hopkins
University, Baltimore, MD.
Grant No.: R03 HS13053
(09/30/02-09/29/03).
Description: The aims
of this project are to determine:
- Whether maternal depressive
symptoms are associated with
children's receipt of pediatrics
visits, hospitalizations,
emergency departments visits,
referrals for
behavior/developmental
concerns and immunizations.
- Whether associations between
maternal depressive symptoms
and children's receipt of services
vary depending on the timing of
symptoms.
- Whether associations between maternal
depressive symptoms and
children's receipt of services vary
depending on participation in
the Healthy Steps program.
Participants will include Asian-American,
Black, Native
American, and Hispanic parents
and their children.
Title: *Health of Grandparents
Raising Their Grandchildren
Principal Investigator: Jan
Blustein, New York University,
New York, NY.
Grant No.: R03
HS11747 (06/01/02-05/31/03).
Description: This study will examine the
following issues:
- What is the
impact of grandparents' care-giving
on grandparent health
status, health behaviors, and
health care utilization patterns.
- How do these impacts differ
for grandparents heading
households with different family
configurations, i.e., split
generation and three-generation
households.
- To what extent can these impacts be
mitigated by the availability of
tangible and social resources?
The three subgroups will
include Black, Hispanic and
other racial and ethnic minority
groups.
Title: *Long-term Health Care
Effects of Domestic Violence
Principal Investigator: Robert
Thompson, Center for Health
Studies, Seattle, WA.
Grant No.: R01 HS10909 (07/09/02-04/30/06).
Description: This study will
assess the longitudinal impact of
domestic violence on the health
care utilization, patterns, and
costs, and social functioning and
health status of female and male
victims and their children.
African-American, Asian-American,
Hispanic/Latino and
Native American families will be
included the analysis.
Title: *Violence and Spinal Cord
Injury (VASCI): Understanding the
Rehabilitation Context
Principal Investigator: Thilo
Kroll, Medstar Research
Institute, Washington, DC.
Grant No.: R03 HS13039
(05/01/02-04/30/03).
Description: The
purpose of this qualitative study
is to develop an in-depth
understanding of the context
and consequences of violently-acquired
spinal cord injury
(VASCI) through an inductive
process, and to develop an
evaluation plan for VASCI
rehabilitation programs that will
serve as a template for future
program evaluations targeting
interventions for African-American,
Hispanic and other
vulnerable populations.
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Quality and Patient Safety
Title: Evidence-based Selective
Referral in Very Low Birth
Weight (VLBW) Infants
Principal Investigator: Jeannette
Rogowski, Rand Corporation,
Santa Monica, CA.
Grant No.: R01 HS13371 (09/19/02-08/31/04).
Description: This study will
investigate the validity of volume
as an indirect quality indicator for
neonatal intensive care by
evaluating the association between
volume and multiple outcomes
for Asian-American, Black,
Hispanic and other VLBW
infants, including measures of
respiratory, infectious,
neurological, gastrointestinal and
ophthalmological diseases.
Title: Parent-Initiated Prevention
Program
Principal Investigator: Dimitri A. Christakis, University
of Washington, Seattle, WA.
Grant No.: R01 HS13302
(09/30/02-09/29/06).
Description: This
randomized controlled trial will
test a computer-driven, patient-centered
expert system to improve
the receipt of evidence-based
prevention for pediatric patients.
The study will assess the
effectiveness of a real-time Parent-Initiated
Prevention Program in
changing physicians' delivery of
preventive care as well as parental
preventive behaviors. African-American,
Asian-American,
American Indian, Hispanic and
other mixed/multi-ethnic families
will be included in the analysis.
Title: Testing A New Measure of
Quality of Asthma Care
Principal Investigator: Yvonne
Senturia, Jacobi Medical Center,
Bronx, NY.
Grant No.: R03
HS13081 (09/30/02-12/31/03).
Description: This study will test the feasibility
and validity of the Asthma Visit
Questionnaire and a new measure
to assess the quality of asthma
care of poor inner-city American
Indian/Alaskan Native, Hispanic,
Black, Asian-American or Pacific
Islander children with asthma.
The measures will be tested in
primary care settings.
Title: Quality of Life in Children after
Liver Transplantation
Principal Investigator: Estella Alonso,
Children's Memorial Hospital,
Chicago, IL.
Grant No.: R03
HS13270 (09/30/02-09/29/04).
Description: This cross-sectional study will (1)
evaluate 150 children, including
Asian-American, Black, Hispanic
and Native American children,
aged 12-18 at the 2-year
anniversary of their transplant, (2)
describe the health-related quality
of life of children who survive
liver transplantation, and (3)
examine the impact of disease
severity at transplant and the type
of graft received on long-term
health related quality of life.
Title: *The Impact of HMOs on
Disparities
Principal Investigator: Kevin Fiscella,
University of Rochester,
Rochester, NY.
Grant No.: R01
HS10910 (09/30/02-09/29/05).
Description: This project will (1) assess the
scope and magnitude of
racial/ethnic and socioeconomic
disparities in HMOs, and (2)
develop age, sex, and case-mix
adjusted utilization and quality
measures that examine
racial/ethnic disparities in
preventive care, satisfaction,
change in health status, use of
expensive hospital-based
procedures, and avoidable hospital
complications and mortality. This
study will include Black,
Hispanic, Asian-American and
other racial and ethnic minority
families.
Title: Partnership to Improve
Children's Healthcare Quality
Principal Investigator: Carole
Lannon, National Initiative for
Children's Healthcare Quality,
Boston, MA.
Grant No.: U18
HS13721 (09/30/02-09/29/06).
Description: This project will bring together
pediatric organizations to use their
coordinated efforts and resources
to support large-scale activities
that have been shown to be
effective in improving care for
children. These partners will
engage American Academy of
Pediatrics' State chapters in
evidence-based collaborative
learning sessions along with an
interactive Web-based quality
improvement tool with the goal of
supporting practice changes
leading to improved care for
children with attention-deficit
hyperactivity disorder (ADHD).
Hispanic, African-American,
Asian-American, Native-American
and Pacific Islander children with
ADHD will be included in this
study.
Title: Implementing Pediatric Patient
Safety Practices
Principal Investigator: Paul Sharek, Child
Health Corporation of America,
Shawnee Mission, KS.
Grant No.: U18 HS 13698 (09/30/02-09/29/06).
Description: This project will plan
and support the expansion of a
medication error reduction
program, identify and collaborate
on best practices in pediatric pain management, and implement a
pediatric patient safety best
practices program for underserved
Medicaid populations.
Title: *Evaluation of the Rewarding
Results Program
Principal Investigator: Gary Young, Boston
University, Boston, MA.
Grant No.: U01 HS13591 (09/30/02-09/29/06).
Description: Under a grant
administered by AHRQ, Dr.
Young will conduct a
comprehensive national
evaluation of six projects. Four of
the projects evaluated will address
issues relevant to children/Medicaid populations. They
include pediatric access, service
and HEDIS scores, and asthma.
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Cost, Use, and Access
Title: Child Mental Health and
Mental Health Service Use
Principal Investigator: Michael
Ganz, Harvard University,
Boston, MA.
Grant No.: R03
HS13047 (04/01/02-09/30/03).
Description: The aims of this project are to
examine families' socio-economic
status, clinical and insurance
correlates of mental health
conditions, and related services
for Black, Hispanic and other
children in the U.S.
Title: Disparities in Child and Family
Health Care Expenditures
Principal Investigator: Paul
Newacheck, University of
California, S.F., San Francisco,
CA.
Grant No.: R01 HS11662
(07/01/02-06/30/04).
Description: The aim
of this project is to examine the
extent to which disparities exist in
out-of-pocket health care
expenses for racial and ethnic
minority families and children,
and the role that health insurance
plays in reducing or eliminating
disparities.
Title: Costs of Care for VLBW
Infants
Principal Investigator: Jeannette Rogowski, RAND
Corporation, Santa Monica, CA.
Grant No.: R03 HS13429
(09/30/02-09/29/03).
Description: This
descriptive study will use data
from 29 hospitals in the Vermont
Oxford Network to examine the
costs and cost-effectiveness of care
for VLBW Asian-American,
Black, Hispanic, Native American
and other racial and ethnic
minority infants, and investigate
how these costs of care vary with
the degree of prematurity. The
study will include 13,610 infants
with birth weights under 1500
grams.
Title: Dental Access and Costs for
Children in a SCHIP Program
Principal Investigator: Peter
Damiano, University of Iowa,
Iowa City, IA.
Grant No.: R03
HS13410 (09/30/02-09/29/04).
Description: The purpose of this study is to
determine dental services
utilization for African-American,
Hispanic and other children in
the Iowa SCHIP, and African-American,
Asian-American,
Hispanic, Pacific Islander,
Indonesian and other children in
the Medicaid program. This
study will also determine the
factors related to unmet and "self-reported"
dental needs for these
children, and the costs associated
with providing dental care for
children in both programs and
whether there is pent-up demand
for dental care.
Title: Health Care Access for Children
of the Working Poor
Principal Investigator: Sylvia Guendelman,
The Regents of the University of
California, Berkeley, CA.
Grant No.: R03 HS13411 (09/30/02-09/29/03).
Description: This study will
analyze data from the California
Health Interview Survey to
compare access and utilization of
health care among working poor
African-American, American-Indian/Alaskan Native, Asian-American,
Latino, Hawaiian, and
other Pacific Islander children
with children in other
socioeconomic strata. The study
will also explore the differences in
access and utilization of health
care between immigrants and
native born children of the
working poor, and assess the
extent to which expansions in
health coverage for working poor
parents can improve access and
use of health services for their
children.
Title: Predictors and Costs of
Adolescent Risky Behavior
Principal Investigator: Lise
Youngblade, University of
Florida, Gainesville, FL.
Grant No.: R03 HS13261 (09/30/02-09/29/03).
Description: The aims of this
study are to:
- Examine the prevalence of risky behaviors and
their associated health care
utilization and cost patterns in a
pool of African-American,
Hispanic and other racial and
ethnic minority adolescents
enrolled in Title XXI State
Children's Health Insurance
Program.
- Examine the odds of
engaging in risky behavior based
on a psycho-social model that
specifies predictive domains.
- Examine the health care use
and costs associated with risky
behaviors and how these patterns
are explained by social-demographic,
health, psycho-social and community
conditions.
Title: *Impact of Three Tier
Prescription Drug Copay on
Use and Spending
Principal Investigator: Dominic
Hodgkin, Heller School for
Social Policy and Management,
Waltham, MA.
Grant No.: R01
HS013092 (09/16/02-08/31/04).
Description: This study will
examine the impact of a three-tier
prescription drug
copayment program on drug
and medical services utilization,
expenditures, and therapeutic
continuity of care, using
enrolled patient cohorts in the
Tufts Health Plan, a large HMO
in Massachusetts. Part of this
study will focus on five specific
drug classes, and African-American,
Hispanic and other
racial and ethnic minority
children will be represented
among users of asthma and
allergy medications, and possibly
antidepressants.
Return to Contents
Capacity Building
Grants for Primary Care
Practice-Based Research
Networks III (PBRNs)
The projects below support research in
two categories:
- Development/enhancement of network infrastructure.
- Exploratory/pilot programs.
Title: Translating National Pediatric
PBRN Research into Practice
Principal Investigator: Eric
Slora, American Academy of
Pediatrics, El Grove Village, IL.
Grant No.: R21 HS13512
(09/30/02-09/29/04).
Description: Pediatric
Research in Office Settings
(PROS), a national network of
over 500 pediatric practices, will
develop a Web-based
information system for posting
of confidential practice-specific
feedback reports, enhance
minority representation in
patient populations served by
pediatricians in PROS, and test
two different methods for
translating research into practice
on optimizing rates of pediatric
immunizations.
Title: A Pediatric PBRN (Pediatric
PitNet) and a Pilot Project
Principal Investigator: Ellen
Wald, Children's Hospital of
Pittsburgh, Pittsburgh, PA.
Grant No.: R21 HS13523
(09/30/02-09/29/04).
Description: This new
network of community and
university-based pediatricians
(Pediatric PitNet) will further
develop its network
infrastructure and conduct a
pilot project to study methods
of increasing adherence to
recommendations for prevention
of unintentional injuries, the
most common cause of death
and disability in young children.
This study will include
suburban middle-class families
and urban and rural minority
groups.
Title: CUBS: Preventive Services for
At-Risk Infants
Principal Investigator: Robert Pace,
Louisiana State University, New
Orleans, LA.
Grant No.: R21
HS13562 (09/30/02-09/29/04).
Description: This new network of pediatric
practices will work together to
study the health and
development of vulnerable
children (African-American and
Hispanic) who previously
received care in the Louisiana
State University's neonatal
intensive care unit. The
network will use standardized
methods of information management and develop a
common database adequate to
support research.
Title: Continuity Research Network
(CORNET)
Principal Investigator: Janet Serwint,
Ambulatory Pediatric
Association, McLean, VA.
Grant No.: R21 HS13582 (09/30/02-09/29/04).
Description: This newly
developed national network
composed of pediatric practices
will assess the health status and
quality of care delivered to
children belonging to
racial/ethnic minority and
underserved populations. The
network will also examine health
care disparities.
Title: Washington University
Pediatric Research
Consortium
Principal Investigator: Jane Garbutt,
Washington University, St.
Louis, MO.
Grant No.: R21
HS13530 (09/30/02-09/29/04).
Description: This newly established network
of community pediatricians
affiliated with Washington
University will establish a Web-based
communication network
to coordinate activities, enhance
a computer interviewing system,
and implement a faculty
development plan to increase
expertise among network
members. Pediatric patients will
include African-American and
Hispanic children.
Title: Enhancement of the
Technology Interface for the
Cincinnati Pediatric Research
Group
Principal Investigator: Thomas DeWitt, Cincinnati
Children's Hospital Medical
Center, Cincinnati, OH.
Grant No.: R21 HS13506 (09/30/02-09/29/04).
Description: This regional
network of pediatric providers
will develop a system to allow
electronic solicitation of data
using handheld devices and
wireless communications. Since
the system will allow a real-time
transmission of clinical
impressions and symptoms, one
of its intended uses is
bioterrorism surveillance.
Participants in this study will
include African-American,
Hispanic and other racial and
ethnic minority children.
Title: Creating a Primary Care
Practice-Based Research
Network
Principal Investigator: Louis Bell,
Children's Hospital of
Philadelphia, Philadelphia, PA.
Grant No.: R21 HS13492
(09/30/02-09/29/04).
Description: The
Children's Hospital of
Philadelphia network will
develop an information system
linking its pediatric practices.
The network will create a
project committee to assess
potential research questions
aimed at improving the delivery
of primary care to urban, low-income
African-American,
Hispanic, and other
racial/ethnic minority patients.
Training Grants
Title: Preventive Asthma Care
Utilization among Black
Children
Principal Investigator: Andrea Ireland,
University of North Carolina-Chapel
Hill, Chapel Hill, NC.
Grant No.: F31 HS11929
(04/01/02-03/31/06).
Description: The aim
of this Predoctoral Award is to
explore factors such as health
insurance coverage, access to
preventive health care, financial
resources, and health beliefs that
contribute to the disparity in preventive asthma care utilization
among African-American
children.
Title: Adherence in Children with
Cystic Fibrosis and Asthma
Principal Investigator: Avani
Modi, University of Florida,
Gainesville, FL.
Grant No.: F31
HS11768 (03/01/02-11/30/04).
Description: The aims of this Predoctoral
Award are to assess the extent of
adherence problems in Black,
Hispanic, and other racial/ethnic
minority children with cystic
fibrosis and asthma, compare
patterns of adherence in two
pediatric pulmonary populations,
and identify key barriers
associated with poor adherence.
Title: Doctor-Parent Communication
and Antibiotic Over-prescribing
Principal Investigator: Rita Mangione-Smith,
University of California,
LA, Los Angeles, CA.
Grant No.: K02 HS13299 (09/30/02-09/29/07).
Description: The aim of this
Independent Scientist Award is to
examine doctor-parent
communication as a determinant
of both inappropriate antibiotic
prescribing and parent satisfaction
with care. The study will then
develop a communication-based
intervention to decrease antibiotic
over-prescribing in pediatric
outpatient settings to improve the
quality of patient care.
Participants in this study will
include Asian-American, African-American
and Latino parents.
This analysis will also include
Asian-American, African-American,
Latino and Middle
Eastern physicians.
Title: Shared Decisionmaking and
Inappropriate Antibiotic Use
Principal Investigator: Elizabeth
Cox, University of Wisconsin,
Madison, WI.
Grant No.: K08
HS13183 (07/01/02-06/30/07).
Description: The aim of this Mentored
Clinical Scientist Development
Award is to develop and validate
an instrument to measure shared
decision-making in pediatric
primary care, and to improve the
quality of care and outcomes for
children with upper respiratory
infections. This study will include
the racial and ethnic minority
status of the physician, patient,
and parent.
Title: Telemedicine for Children in
Rural Emergency Departments
Principal Investigator: James
Marcin, University of California,
Davis, Davis, CA.
Grant No.: K08 HS131179 (07/19/02-06/30/07).
Description: The aim of this
Mentored Clinical Scientist
Development Award is to
determine what impact
telemedicine consultations have
on the quality and satisfaction of
care that critically ill and injured
children receive in rural
emergency departments.
Participants will include racial and
ethnic minority parents and
children.
Title: Informative Technology:
Linking Parents and Providers
Principal Investigator: Stephen
Porter, Children's Hospital,
Boston, MA.
Grant No.: K08
HS11660 (07/01/02-06/30/05).
Description: The aims of this Mentored
Clinical Scientist Development
Award are to develop and test an
electronic interface on the basis of
user-perceived quality and the
capture of valid data for asthma-specific
history. Researchers will
present parent-derived
information to providers in the
content of current evidence-based
guidelines and assess the effects of
this electronically-supported
collaboration on parents' report of
satisfaction and process measures
of quality. African-American,
Latino and other racial/ethnic
parents and children will
participate in this study.
Title: Modeling Health Utilization of
Medicaid Children
Principal Investigator: David Rein, Georgia
State University, Atlanta, GA.
Grant No.: R03 HS13286
(09/30/02-02/28/03).
Description: The aim of
this Dissertation Award is to
predict the health care expenses
for the full population of Georgia
Medicaid children (including
American-Indian, Alaskan Native,
Asian-American or Pacific
Islander, Hispanic and Black
children). Two leading
forecasting models will focus on
three goals: (1) To build a better
predictive model of health service
utilization, (2) address health
policy relevant to children with
special health care needs, and (3)
build upon the behavioral model
theory of who uses health services
and why.
Title: *Improving Health Care
Outcomes among the Homeless
Principal Investigator: Margot
Kushel, Regents of the University
of California, San Francisco, CA.
Grant No.: K08 HS11415
(03/01/02-02/28/07).
Description: The aim of
this Mentored Clinical Scientist
Development Award is to
examine the effects of different
levels of community services
(including housing, health care,
and overall services) for homeless
people on their use of hospitals
and emergency departments. The
study will include racial/ethnic minority adults and children.
Researchers will also examine
the cost-effectiveness of case-management
as a strategy for
improving health outcomes
among HIV infected homeless
people, and examine the health
care utilization and public costs
of a cohort of homeless persons
under different policy options—supportive housing and usual
care.
Title: *Emergency Department
Crowding: Causes and
Consequences
Principal Investigator: Brent Asplin,
HealthPartners Research
Foundation, Minneapolis, MN.
Grant No.: K08 HS13007
(03/01/02-02/28/07).
Description: The aim
of this Mentored Clinical
Scientist Development Award is
to determine the availability and
time of outpatient appointments
for medical and surgical
conditions requiring urgent
emergency department follow-up
care according to insurance
status. Project 1 of this study
includes children, pregnant
women, mentally disabled
patients and elderly patients. The study population at ED sites will interact with
investigators to complete survey
instruments addressing ED
crowding and patients'
outcomes. Participants will be
from racial and ethnic minority
and non-minority groups.
Title: *Ethnography of the Social
Ethics of Catholic Health
Care
Principal Investigator: Simon Lee, University of
California-SF, San Francisco,
CA.
Grant No.: R03 HS13111
(09/30/02-06/25/02).
Description: This
Dissertation research project will
investigate the role of Catholic
religious values in the design of
health care policy and service
delivery intended for racial and
ethnic minority populations.
Title: *Morehouse School of
Medicine (MSM) Clinical
Faculty Research Training
Program
Principal Investigator: Robert Mayberry,
Morehouse School of Medicine,
Atlanta, GA.
Grant No.: R24
HS11617 (09/03/02-09/29/05).
Description: The goals of this project are (1)
to strengthen the MSM
infrastructure by enhancing the
capacity of individual faculty
members to conduct health
services research aimed at
improving the quality of health
services for African-Americans
and other vulnerable
populations, and (2) eliminate
racial and ethnic health care
disparities. This program will
include research on barriers to
prenatal care for women in low
socioeconomic groups, improving immunization rates
for low-income preschool
children, and translating
prevention research into primary
practice.
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*Project includes children or children's health care issues, but does not focus exclusively on children.
For More Information
For more information about child
health activities at AHRQ, visit:
http://www.ahrq.gov/child/
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AHRQ Publication No. 03-P015
Current as of March 2003
Internet Citation:
Grant Awards Relevant to Racial and Ethnic Minority Children. Fact Sheet. AHRQ Publication No. 03-P015, March 2003. Agency for Healthcare Research and Quality, Rockville, MD. http://www.ahrq.gov/research/minch02.htm
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