Slide Presentation of the 2007 Annual Meeting of AHRQ

National Consumer Principles (continued)

• Systems for e-health data exchange must protect the integrity, security, privacy and confidentiality of an individual's information
• Governance and administration of e-health networks should be transparent and publicly accountable

Notes:

Systems for e-health data exchange must protect the integrity, security, privacy and confidentiality of an individual's information

• Reasonable safeguards developed at front end & just follow the information as it is accessed or transferred
• Notification in a timely manner if breach or privacy violation
• Meaningful legal and financial remedies to address any security breaches or privacy violations
• Federal privacy standards that restrict the use and disclosure of personally identifiable health information should apply to all entities engaged in HIE

The governance and administration of e-health networks should be transparent and publicly accountable

• Independent bodies, accountable to the public, should oversee electronic health information sharing
• Consumers should have equal footing with other stakeholders