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Discovery through Leadership - PXE 2008

Join us for the PXE 2008 International Meeting
September 19-21, 2008
Bethesda North Marriott, Bethesda, MD

More information 
Register online 

Julia Holman, winner of New Vision Award
Rick Guidotti presents at the PXE Conference!

 
New MemberGram - Summer 2008   PXE Vision: By and For PXEers

MemberGram Summer 2008

Download PDF

 

 

 

Pat Manson

Two Paths                   Dec. 2007
Own Your Disease     Oct. 2007
Gifts for PXEers        Dec. 2006
by Pat Manson

Past columns

 
Vision Information   Webinar and LIVE-Chat

Go Clinical Trials Comparing Avastin® and Lucentis®

Go Experiencing a Retinal Bleed?

Go Finally! Analysis of the Use of Avastin for Retinal Bleeding of PXE

Go

 Avastin News - Genentech agrees to allow ophthalmologists access to Avastin for intraocular injection in the treatment of potentially blinding diseases [12-20-2007]

Go One Woman's Journey

Go Amsler Grid Vision Check

 


Announcing
PXE International's

new, monthly, one-hour

Webinar and LIVE-Chat series!

Webinar - Experts present on specific topics related to PXE

LIVE-Chat - Informal discussions with other PXEers

Join us!

More information

 
What is PXE?


Pseudoxanthoma elasticum (PXE) is an inherited disorder that causes select elastic tissue in the body to become mineralized.  Learn more about PXE signs, effects and medical care in the PXE General Bulletin.

 

 
 
Dollar Bill Fundraiser - Over $3,080 raised since June!


A simple way to raise badly needed funding for PXE research.  Send a dollar to family and friends - we'll send you everything you need to run your campaign!  Find out more

 

 

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